日本精神分裂症、抑郁症、痴呆症和中风患者照顾者的负担：生活质量、工作生产力和定性照顾负担的比较分析。

Burden in caregivers of patients with schizophrenia, depression, dementia, and stroke in Japan: comparative analysis of quality of life, work productivity, and qualitative caregiving burden.

机构信息

Medical Affairs, Otsuka Pharmaceutical Co., Ltd. Shinagawa Grand Central Tower, 2-16-4 Konan, Minato-ku, Tokyo, 108-8242, Japan.

Showa University, Tokyo, Japan.

出版信息

BMC Psychiatry. 2024 Sep 2;24(1):591. doi: 10.1186/s12888-024-06000-x.

DOI:10.1186/s12888-024-06000-x

PMID:39223532

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11370303/

Abstract

BACKGROUND

The main objective of this study was to examine the burden of schizophrenia, depression, Alzheimer's disease/dementia, and stroke on caregivers and non-caregivers in Japan. This study also aimed to provide a comparative landscape on the burden of caregiving for each disorder.

METHODS

The Japan National Health and Wellness Survey database, 2016 and 2018 was used in this study. Health-related quality of life (HRQoL), work productivity, and health care utilization were assessed using a self-administered, Internet-based questionnaire. The burden of caregiving experienced by each group of caregivers was compared with background-matched non-caregivers (controls) as well as with caregivers of patients with each disorder.

RESULTS

Caregivers of patients with schizophrenia, depression, Alzheimer's disease/dementia, or stroke had lower HRQoL, higher healthcare costs and work productivity impairment than non-caregivers. Furthermore, caregivers of patients with psychiatric disorders such as schizophrenia and depression had lower HRQoL and work productivity than caregivers of patients with Alzheimer's disease/dementia and stroke. In addition, according to the Caregiver Reaction Assessment (CRA), caregivers of patients with schizophrenia and depression were more inclined to perceive a loss in physical strength and financial burden to the same extent as their self-esteem.

CONCLUSIONS

This study indicated a substantial caregiving burden among caregivers of patients with psychiatric and neurological diseases in Japan. The caregiver burden of psychiatric disorders (schizophrenia and depression) was greater than that of neurological disorders (Alzheimer's disease/dementia and stroke), suggesting a need to provide support to caregivers of patients with psychiatric disorders to be better able to care for their patients.

TRIAL REGISTRATION

None.

摘要

背景

本研究的主要目的是考察精神分裂症、抑郁症、阿尔茨海默病/痴呆症和卒中患者的照顾者和非照顾者的负担。本研究还旨在提供关于每种疾病护理负担的比较情况。

方法

本研究使用了日本 2016 年和 2018 年的全国健康与健康调查数据库。使用自我管理的基于互联网的问卷评估健康相关生活质量（HRQoL）、工作生产力和医疗保健利用情况。将每组照顾者的护理负担与背景匹配的非照顾者（对照组）以及与每种疾病患者的照顾者进行比较。

结果

与非照顾者相比，精神分裂症、抑郁症、阿尔茨海默病/痴呆症或卒中患者的照顾者 HRQoL 较低，医疗保健费用较高，工作生产力受损。此外，与阿尔茨海默病/痴呆症和卒中患者的照顾者相比，精神分裂症和抑郁症等精神疾病患者的照顾者 HRQoL 和工作生产力较低。此外，根据照顾者反应评估（CRA），精神分裂症和抑郁症患者的照顾者在身体力量丧失和经济负担方面的自我感知与自尊程度相同。