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如何回归？首次缺血性脑卒中后处于工作年龄段患者的体验：脑卒中后 12-24 个月患者观点的阐释现象学分析。

How to return? experiences of patients in working age after first Ischaemic stroke: an interpretative phenomenological analysis of patient´s perspective at 12 - 24 months post-stroke.

机构信息

Department of Nursing, Faculty of Health Sciences, Palacký University Olomouc, Olomouc, Czech Republic.

出版信息

Int J Qual Stud Health Well-being. 2024 Dec;19(1):2398249. doi: 10.1080/17482631.2024.2398249. Epub 2024 Sep 4.

DOI:10.1080/17482631.2024.2398249
PMID:39229807
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11376287/
Abstract

BACKGROUND

Limited evidence of young adult patient-reported outcomes and experiences after ischaemic stroke has been conducted.

AIM

To investigate the meaning of the lived experiences of stroke patients in working age 12-24 months after their first IS.

MATERIAL AND METHODS

The exploratory qualitative study used an interpretative phenomenological analysis (IPA) design. Nine ischaemic stroke patients (with age ranges from 41 to 50 years) took part in semi-structured qualitative interviews.

RESULTS

Even with mild residual neurological deficit, IS negatively impacted the quality of life daily and social life. Six subthemes and three interconnected group experiential themes were generated: (i)

CONCLUSION

The study highlights the current gaps and limitations in supporting the needs of stroke patients in working age in long-term post-stroke care. The findings are crucial for healthcare professionals to develop improved age- and mild- impairment-appropriate strategies or tailor self-management interventions for stroke patients of working age.: NCT04839887.

摘要

背景

针对年轻成年缺血性脑卒中患者发病后报告的结果和经历，相关证据有限。

目的

探究发病后 12-24 个月处于工作年龄段的脑卒中患者的生活体验的意义。

材料和方法

本探索性定性研究采用解释现象学分析（IPA）设计。9 名缺血性脑卒中患者（年龄 41-50 岁）参加了半结构化定性访谈。

结果

即使存在轻微的神经功能缺损残留，脑卒中仍对日常生活和社会生活质量产生负面影响。共生成 6 个亚主题和 3 个相互关联的组体验主题：（i）

结论

本研究强调了目前在长期脑卒中后护理中支持工作年龄段脑卒中患者需求方面存在的差距和局限性。研究结果对医疗保健专业人员制定更适合年龄和轻度损伤的策略或为工作年龄段的脑卒中患者定制自我管理干预措施至关重要。注册号：NCT04839887。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/49e3/11376287/c037c4829722/ZQHW_A_2398249_F0002_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/49e3/11376287/87c358647822/ZQHW_A_2398249_F0001_B.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/49e3/11376287/c037c4829722/ZQHW_A_2398249_F0002_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/49e3/11376287/87c358647822/ZQHW_A_2398249_F0001_B.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/49e3/11376287/c037c4829722/ZQHW_A_2398249_F0002_OC.jpg

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本文引用的文献

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Factors that facilitate and hinder the return to work after stroke: an overview of systematic reviews.脑卒中后重返工作的促进和阻碍因素：系统评价综述。
Med Lav. 2022 Jun 28;113(3):e2022029. doi: 10.23749/mdl.v113i3.13238.
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Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age-appropriate support and rehabilitation.青年脑卒中患者康复需求和体验（YARNS）：对数字账户的综述，以提供适合年龄的支持和康复信息。
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Stroke in young adults: Current trends, opportunities for prevention and pathways forward.
年轻成年人中的中风：当前趋势、预防机会及未来路径
Am J Prev Cardiol. 2020 Sep 9;3:100085. doi: 10.1016/j.ajpc.2020.100085. eCollection 2020 Sep.
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A prediction model of health-related quality of life in young adult patients with stroke.青年脑卒中患者健康相关生活质量预测模型
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The Unmet Needs of Community-Dwelling Stroke Survivors: A Systematic Review of Qualitative Studies.社区居住的中风幸存者未满足的需求：定性研究的系统评价。
Int J Environ Res Public Health. 2021 Feb 22;18(4):2140. doi: 10.3390/ijerph18042140.
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Why Me?: A Qualitative Study on the Experiences of Young Stroke Survivors in the Accra Metropolis of Ghana, West Africa.为什么是我？：对西非加纳阿克拉大都会年轻中风幸存者经历的定性研究。
J Patient Exp. 2020 Dec;7(6):1788-1796. doi: 10.1177/2374373520967505. Epub 2020 Oct 27.
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J Stroke Cerebrovasc Dis. 2021 Apr;30(4):105600. doi: 10.1016/j.jstrokecerebrovasdis.2021.105600. Epub 2021 Jan 15.
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