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澳大利亚针对患有复杂残疾的年轻人,开展的一项利益相关者参与的、对参与和融入途径及资源(PREP)材料进行调整的实施可行性研究。

A stakeholder-involved adaptation of pathways and resources for engagement and participation (PREP) material with young adults with complex disability in Australia: an implementation feasibility study.

作者信息

Cassidy Annabelle, Bannon Natasha, Wallen Margaret, Dimarco Alessandra, Garrity Natasha, Hunter Oliver, Anaby Dana, Fredrickson Emma, Cowan Harry, Knudsen Dewa, Thornton Scott, Imms Christine

机构信息

School of Allied Health, Australian Catholic University, Melbourne, Australia.

School of Allied Health, Australian Catholic University, North Sydney, Australia.

出版信息

Disabil Rehabil. 2025 May;47(10):2586-2598. doi: 10.1080/09638288.2024.2397083. Epub 2024 Sep 5.

DOI:10.1080/09638288.2024.2397083
PMID:39235070
Abstract

PURPOSE

Pathways and Resources for Engagement and Participation (PREP) is an intervention to optimise individuals' participation by building problem-solving capacity and addressing environmental barriers. We investigated the feasibility of implementing PREP with young adults (18-30 years) with complex disability in Australia.

MATERIALS AND METHODS

Explanatory sequential mixed methods study in three stages. (i) PREP materials were collaboratively adapted by the research team and consumer research partners. (ii) Steps 1 and 2 of PREP (YA Supplement) were completed with three young adults with disability, and preliminary feasibility explored using qualitative methods. (iii) The feasibility of implementing adapted materials was examined using quantitative and qualitative methods involving four young adults with disability, six support people and two service providers.

RESULTS

Stage 1: PREP Young Adults Supplement (PREP (YA Supplement)) for use alongside PREP was developed. Stages 2 and 3: findings indicated PREP (YA Supplement) was acceptable, appropriate and feasible. Three themes were identified: setting and achieving goals were associated with challenges and benefits; finding the right time to implement the program was necessary; and PREP (YA Supplement) drives a shift to a participation-focused approach.

CONCLUSION

PREP delivered alongside PREP (YA Supplement) appears feasible with Australian young adults with complex disability.

摘要

目的

参与和融入的途径与资源(PREP)是一项干预措施,旨在通过培养解决问题的能力和消除环境障碍来优化个体的参与度。我们调查了在澳大利亚对患有复杂残疾的年轻人(18至30岁)实施PREP的可行性。

材料与方法

采用分三个阶段的解释性序列混合方法研究。(i)研究团队和消费者研究伙伴共同改编PREP材料。(ii)三名残疾青年完成了PREP(青年补充版)的第1步和第2步,并使用定性方法探索了初步可行性。(iii)采用定量和定性方法对四名残疾青年、六名支持人员和两名服务提供者进行调查,以检验改编材料实施的可行性。

结果

第1阶段:开发了与PREP配套使用的PREP青年补充版(PREP(YA补充版))。第2和第3阶段:研究结果表明PREP(YA补充版)是可接受的、合适的且可行的。确定了三个主题:设定和实现目标与挑战和益处相关;找到实施该计划的合适时间是必要的;PREP(YA补充版)推动向以参与为重点的方法转变。

结论

与PREP(YA补充版)一起实施PREP对于澳大利亚患有复杂残疾的年轻人似乎是可行的。

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