University of Porto.
ULS Trás-os -Montes e Alto Douro.
ARP Rheumatol. 2024 Jul-Sep;3(3):196-205. doi: 10.63032/IYRF3521.
In this study, we aimed to assess the transition readiness levels amongst patients with childhood-onset rheumatic diseases. Additionally, we sought to identify and analyze predictive factors associated with better transition readiness skills in adolescent and young adult (AYAs) patients.
This is a monocentric cross-sectional study that includes patients between 14 and 26 years of age who attended outpatient pediatric and young adult rheumatology appointments between October and December of 2023 and that were diagnosed with an immune-mediated rheumatic disease before reaching 18 years of age, with at least 1 year of disease duration. Patients were presented with a questionnaire that contained demographic and clinical questions, TRACS (Questionário de Preparação da Transição para a Autonomia nos Cuidados de Saúde) questionnaire - a validated Portuguese version of the Transition Readiness Assessment Questionnaire (TRAQ), and Hospital Anxiety and Depression Scale (HADS) questionnaire. Data was analyzed to assess the significant associations between the different variables and transition readiness outcome measured by the TRACS. Descriptive statistics, statistical comparisons and logistic regression analysis were performed.
A total of 69 patients with a median age of 20 [17.5-22.5] were included in this study. The median TRACS score was 4.41 [4.09-4.74]. Significantly higher TRACS scores were observed in patients who were female, 18 years of age or older, had a higher level of education, were employed, had active disease or that belonged to middle-class (when compared to patients belonging to upper- middle class). The logistic regression analysis demonstrated that being a female or having an educational status equal to 12th grade or superior emerged as predictors of higher transition readiness levels.
Our study identified female sex and higher level of education as predictors of increased transition readiness levels. Therefore, healthcare providers should consider these variables when assessing patients for transition readiness and focus on improving transition process, especially in male and less educated AYAs.
本研究旨在评估儿童期起病的风湿性疾病患者的过渡准备水平。此外，我们试图确定并分析与青少年和年轻成人（AYA）患者更好的过渡准备技能相关的预测因素。
这是一项单中心横断面研究，纳入了 2023 年 10 月至 12 月间在儿科和年轻成人风湿科门诊就诊的年龄在 14 至 26 岁之间的患者，这些患者在 18 岁之前被诊断为免疫介导的风湿性疾病，且疾病持续时间至少 1 年。患者接受了一份问卷，其中包含人口统计学和临床问题、TRACS（健康照护过渡准备问卷）问卷-TRAQ 的验证版葡萄牙语版，以及医院焦虑和抑郁量表（HADS）问卷。对数据进行分析，以评估不同变量与通过 TRACS 测量的过渡准备结果之间的显著关联。进行了描述性统计、统计比较和逻辑回归分析。
共有 69 名患者纳入本研究，中位年龄为 20 [17.5-22.5]岁。中位 TRACS 评分为 4.41 [4.09-4.74]。在女性、18 岁或以上、受教育程度较高、就业、患有活动性疾病或属于中产阶级（与中上阶层患者相比）的患者中，TRACS 评分显著较高。逻辑回归分析表明，女性或接受 12 年级或以上同等教育程度是过渡准备水平较高的预测因素。
我们的研究确定了女性和较高的教育程度是过渡准备水平提高的预测因素。因此，医疗保健提供者在评估患者的过渡准备情况时应考虑这些变量，并专注于改善过渡过程，特别是在男性和受教育程度较低的 AYA 中。
