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INTIMASY-TBI 指南:优化创伤性脑损伤成年人的 INTIMAcy、性和人际关系。

INTIMASY-TBI Guideline: Optimization of INTIMAcy, SexualitY, and Relationships Among Adults With Traumatic Brain Injury.

机构信息

Author Affiliations: Rehabilitation Sciences, Institute, University of Toronto, Toronto, Ontario (Ms Patsakos and Dr Bayley); KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario (Ms Patsakos and Dr Bayley); Physical Medicine & Rehabilitation, School of Medicine, Indiana University, Indianapolis, Indiana (Drs Backhaus and Neumann); Shepherd Center, Atlanta, Georgia (Ms Farris); Kessler Institute for Rehabilitation, West Orange, New Jersey (Dr King); Faculty of Medicine, McGill University, Montreal, Quebec (Dr Moreno); and Department of Physical Medicine and Rehabilitation, Baylor College of Medicine, Houston, Texas (Dr Sander).

出版信息

J Head Trauma Rehabil. 2024;39(5):395-407. doi: 10.1097/HTR.0000000000000981. Epub 2024 Sep 10.

Abstract

INTRODUCTION

Traumatic brain injury (TBI) can negatively impact intimacy, relationships, and sexual functioning through changes in physical, endocrine, cognitive, behavioral, and emotional function. Without intervention, diminished intimacy and/or sexual functioning in individuals with TBI may persist. Although most health care professionals agree that sexuality and intimacy in relationships are significant concerns and should be addressed in rehabilitation, these concerns are not typically discussed during rehabilitation and discharge planning for people with TBI. To address this gap, an expert panel of North American clinicians and researchers convened to develop evidence-informed recommendations to assist clinicians in providing a framework and guidance on how clinicians can support individuals after TBI.

METHODS

A systematic search of multiple databases was conducted to identify relevant evidence published from 2010 to 2023. The INTIMASY-TBI Expert Panel developed recommendations for optimizing discussions and interventions related to intimacy and sexuality for people with TBI in rehabilitation and community-based programs. For each recommendation, the experts evaluated the evidence by examining the study design and quality to determine the level of evidence.

RESULTS

A total of 12 recommendations were developed that address the following topic areas: (1) interprofessional team training, (2) early education on the effects of TBI on intimacy, relationships, and sexuality, (3) creating individualized interventions, (4) education, assessment, and management of the causes of sexual dysfunction, and (5) providing written materials and relationship coaching to persons with TBI and their partners. Two recommendations were supported by Level A evidence, 1 was supported by Level B evidence, and 9 were supported by Level C (consensus of the INTIMASY-TBI Expert Panel) evidence. A decision algorithm was developed to assist clinicians in navigating through the recommendations.

CONCLUSION

The INTIMASY-TBI Guideline is one of the first comprehensive clinical practice guidelines to offer strategies to trained clinicians to discuss the physical, psychosocial, behavioral, and emotional aspects of intimacy and sexuality with persons with TBI.

摘要

简介

创伤性脑损伤 (TBI) 可通过改变身体、内分泌、认知、行为和情绪功能,对亲密关系、人际关系和性功能产生负面影响。如果不进行干预,TBI 患者的亲密关系和/或性功能可能会持续减弱。尽管大多数医疗保健专业人员都认为性和人际关系中的亲密关系是重要的关注点,并且应该在康复中得到解决,但这些关注点在 TBI 患者的康复和出院计划中通常没有得到讨论。为了解决这一差距,一个由北美临床医生和研究人员组成的专家小组召开会议,制定了循证建议,以帮助临床医生提供一个框架和指导,说明临床医生如何在 TBI 后支持个人。

方法

系统搜索了多个数据库,以确定从 2010 年到 2023 年发表的相关证据。INTIMASY-TBI 专家小组为康复和社区项目中 TBI 患者的亲密关系和性行为制定了优化讨论和干预的建议。对于每个建议,专家通过检查研究设计和质量来评估证据,以确定证据水平。

结果

制定了 12 项建议,涵盖以下主题领域:(1)跨专业团队培训,(2)关于 TBI 对亲密关系、人际关系和性的影响的早期教育,(3)制定个性化干预措施,(4)性功能障碍原因的教育、评估和管理,以及(5)为 TBI 患者及其伴侣提供书面材料和关系指导。两项建议得到了 A 级证据的支持,一项建议得到了 B 级证据的支持,九项建议得到了 C 级(INTIMASY-TBI 专家小组共识)证据的支持。制定了一个决策算法,以帮助临床医生在建议中进行导航。

结论

INTIMASY-TBI 指南是首批提供策略的综合临床实践指南之一,这些策略为训练有素的临床医生提供了与 TBI 患者讨论亲密关系和性的身体、心理社会、行为和情感方面的方法。

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