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人道主义应对中的“新老”关怀维度:公共卫生缓和医疗推进人道主义-发展关系、去殖民化和本地化思想的机遇。

The "New-Old" Dimensions of Caring in Humanitarian Response: The Opportunity for Public Health Palliative Care to Advance the Humanitarian-Development Nexus, Decoloniality, and Localization Thought.

机构信息

Centre for Humanitarian Leadership, Deakin University, Burwood, VIC, Australia.

Center for Humanitarian Health, Johns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA.

出版信息

Inquiry. 2024 Jan-Dec;61:469580241277443. doi: 10.1177/00469580241277443.

DOI:10.1177/00469580241277443
PMID:39257381
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11402077/
Abstract

How can palliative care framings advance humanitarian discourse? The imperative for palliative care in humanitarian settings is increasingly urgent. Recent efforts by health and humanitarian organizations demonstrate increasing attention to the issue. Yet palliative care is still not adequately formally considered or enacted by humanitarian agencies in rhetoric, policy, research, or practice. Even where it is considered in humanitarian action, palliative care is often assumed to be a novel intervention, rather than a caring practice that has existed from time immemorial, including in humanitarian situations. The generation of ideas in this paper has followed a dynamic, iterative, and reflexive process through engagement with key literature, critical thinking, conversations with colleagues across both sectors, primary data, and debate amongst the authors. The paper argues that the current dominant frame of a new, specialized, professionalized, and medicalized palliative care in the humanitarian sector would perpetuate existing challenges. It contends that viewing both fields through a "new-old" lens, where historical and traditional caring practices intertwine with progressive discourse for a more just and appropriate public health response, can further humanitarianism. It posits that the humanitarian-development nexus, decoloniality, and localization thought can benefit from palliative care practice through critical interaction with a broad range of literature.

摘要

姑息治疗框架如何能促进人道主义话语?在人道主义环境中提供姑息治疗的必要性变得越来越紧迫。最近卫生和人道主义组织的努力表明,人们越来越关注这个问题。然而,在言辞、政策、研究或实践中,人道主义机构并没有充分地正式考虑或实施姑息治疗。即使在人道主义行动中考虑到姑息治疗,它也常常被认为是一种新的干预措施,而不是一种自古以来就存在的关怀实践,包括在人道主义局势中。本文的观点是通过与关键文献的互动、批判性思考、与两个部门的同事的对话、原始数据以及作者之间的辩论,以动态、迭代和反思的方式产生的。本文认为,目前在人道主义部门中新的、专门的、专业化的和医学化的姑息治疗主导框架将使现有的挑战长期存在。它认为,通过“新-旧”的视角来看待这两个领域,将历史和传统的关怀实践与更公正和适当的公共卫生应对的进步话语交织在一起,可以进一步推动人道主义事业。它假设,人道主义-发展关系、去殖民化和本地化思想可以通过与广泛的文献进行批判性互动,从姑息治疗实践中受益。

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本文引用的文献

1
Dying in honour: experiences of end-of-life palliative care during the 2013-2016 Ebola outbreak in Guinea.尊严地离世:2013 - 2016年几内亚埃博拉疫情期间临终姑息治疗的经历
J Int Humanit Action. 2021;6(1):10. doi: 10.1186/s41018-021-00099-3. Epub 2021 May 8.
2
The humanitarian-development nexus: humanitarian principles, practice, and pragmatics.人道主义与发展的关系:人道主义原则、实践与务实做法。
J Int Humanit Action. 2020;5(1):18. doi: 10.1186/s41018-020-00086-0. Epub 2020 Dec 10.
3
Decolonising humanitarianism or humanitarian aid?去殖民化的人道主义还是人道主义援助?
PLOS Glob Public Health. 2022 Apr 25;2(4):e0000179. doi: 10.1371/journal.pgph.0000179. eCollection 2022.
4
The 'conflict paradox': humanitarian access, localisation, and (dis)empowerment in Myanmar, Somalia, and Somaliland.“冲突悖论”:缅甸、索马里和索马里兰的人道准入、本土化与(去)赋权
Disasters. 2023 Oct;47(4):849-869. doi: 10.1111/disa.12573. Epub 2023 Apr 4.
5
Decolonizing end-of-life care: lessons and opportunities.去殖民化的临终关怀:经验与机遇
Ecancermedicalscience. 2022 Apr 28;16:ed121. doi: 10.3332/ecancer.2022.ed121. eCollection 2022.
6
Access to palliative care: the primacy of public health partnerships and community participation.获得姑息治疗:公共卫生伙伴关系和社区参与的首要地位。
Lancet Public Health. 2021 Nov;6(11):e791-e792. doi: 10.1016/S2468-2667(21)00213-9. Epub 2021 Oct 9.
7
Biomedicine and the soul of medicine: optimising the balance.生物医学与医学的灵魂:优化平衡。
Lancet Oncol. 2021 Jul;22(7):907-909. doi: 10.1016/S1470-2045(21)00271-0.
8
Culturally sensitive palliative care in humanitarian action: Lessons from a critical interpretive synthesis of culture in palliative care literature.人道主义行动中的文化敏感型缓和医疗:缓和医疗文献中文化批判性阐释综合的启示。
Palliat Support Care. 2022 Aug;20(4):582-592. doi: 10.1017/S1478951521000894.
9
Addressing obstacles to the inclusion of palliative care in humanitarian health projects: a qualitative study of humanitarian health professionals' and policy makers' perceptions.解决将姑息治疗纳入人道主义卫生项目的障碍:一项关于人道主义卫生专业人员和政策制定者看法的定性研究
Confl Health. 2020 Oct 28;14:70. doi: 10.1186/s13031-020-00314-9. eCollection 2020.
10
Dying individuals and suffering populations: applying a population-level bioethics lens to palliative care in humanitarian contexts: before, during and after the COVID-19 pandemic.濒死个体和受苦人群:从人口层面的生命伦理学视角看疫情前后的人道主义情境中的缓和医疗
J Med Ethics. 2020 Aug;46(8):514-525. doi: 10.1136/medethics-2019-105943. Epub 2020 Jun 19.