在 COVID-19 大流行期间加拿大发育障碍者的负面和正面经历：一项基于安大略省的为期一年的调查。

Negative and Positive Experiences During the COVID-19 Pandemic in Canadians With Developmental Disabilities: A One-Year Ontario-Based Survey.

机构信息

Campbell Family Mental Health Research Institute, Centre for Addiction and Mental Health, Toronto, Ontario, Canada.

Lunenfeld-Tanenbaum Research Institute, Sinai Health, Toronto, Ontario, Canada.

出版信息

J Appl Res Intellect Disabil. 2024 Nov;37(6):e13300. doi: 10.1111/jar.13300.

DOI:10.1111/jar.13300

PMID:39258589

Abstract

PURPOSE

Understanding the experiences of people with developmental disabilities during the initial period of COVID-19 pandemic.

METHODS

Individuals with developmental disabilities and their caregivers completed baseline and up to five follow-up online surveys using the CRISIS-AFAR measures, between July 2020 and September 2021. We used qualitative (thematic analysis) and quantitative (MANOVA) analytic methods.

RESULTS

One hundred and eighteen participants (64 caregivers on individuals 6-62 years, 54 self-reporting individuals aged 17-55 years) completed baseline survey; 46 participants (23 caregivers, 23 self-reporting adults) completed ≥1 follow-up. Qualitative themes included uncertainty, and negative and positive influences on behaviours and routines, daily life and mental wellness. Those experiencing positive impacts did not stably perceive so longitudinally.

CONCLUSIONS

Despite both negative and positive influences on individuals with developmental disabilities and their families, the prolonged pandemic had wide-ranging repercussions. Emergency preparedness planning should consider the disruptive effects of public health measures on routine and support for this vulnerable population.

摘要

目的

了解发育障碍者在 COVID-19 大流行初期的经历。

方法

2020 年 7 月至 2021 年 9 月，发育障碍者及其照顾者使用 CRISIS-AFAR 措施完成了基线和最多五次随访的在线调查。我们使用了定性（主题分析）和定量（MANOVA）分析方法。

结果

118 名参与者（64 名照顾者在 6-62 岁之间，54 名自我报告的 17-55 岁成年人）完成了基线调查；46 名参与者（23 名照顾者，23 名自我报告的成年人）完成了≥1 次随访。定性主题包括不确定性，以及对行为、日常生活和心理健康的负面和积极影响。那些经历积极影响的人并没有长期稳定地感受到这些影响。