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基于证据的脑瘫婴儿评估:新生儿随访环境中的诊断时间线和干预途径。

Evidence-Based Infant Assessment for Cerebral Palsy: Diagnosis Timelines and Intervention Access in a Newborn Follow-up Setting.

机构信息

Waisman Center, University of Wisconsin-Madison, Madison, USA.

Department of Pediatrics, University of Wisconsin-Madison, Madison, USA.

出版信息

J Child Neurol. 2024 Nov;39(13-14):461-469. doi: 10.1177/08830738241279690. Epub 2024 Sep 12.

DOI:10.1177/08830738241279690
PMID:39262331
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11523066/
Abstract

Evidence-based assessment pathways inform early detection of cerebral palsy and access to intervention. This study investigated the relationships between early evidence-based assessments, diagnosis timeline, and rehabilitation intervention access in a population of children with cerebral palsy who were seen between 2010 and 2022 at the University of Wisconsin Waisman Center Newborn Follow Up Clinic. Cerebral palsy-specific assessments were increasingly integrated after the publication of early detection guidelines by Novak et al. in 2017. Age at cerebral palsy first mention (high risk for cerebral palsy) decreased over time, although age at diagnosis remained similar. Infants who received multiple evidence-based assessments were diagnosed at a younger age. Ninety-nine percent of children were referred to rehabilitation therapies before diagnosis. Infant age at referral to outpatient therapies decreased over time. This study provides novel clinical data on diagnosis timelines and identifies remaining gaps related to implementation feasibility toward improved early diagnosis and intervention access.

摘要

循证评估途径为脑瘫的早期发现和干预提供信息。本研究调查了 2010 年至 2022 年期间在威斯康星大学怀斯曼中心新生儿随访诊所就诊的脑瘫患儿中,早期循证评估、诊断时间线和康复干预途径之间的关系。在 Novak 等人 2017 年发布早期检测指南后,脑瘫特异性评估逐渐得到整合。脑瘫首次提及(脑瘫高危)的年龄随着时间的推移而降低,尽管诊断时的年龄保持相似。接受多项循证评估的婴儿的诊断年龄较小。99%的儿童在诊断前被转介到康复治疗。儿童转介至门诊治疗的年龄随着时间的推移而降低。本研究提供了关于诊断时间线的新的临床数据,并确定了与实施可行性相关的剩余差距,以改善早期诊断和干预途径。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/8074c08d9e74/nihms-2017515-f0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/46b1c1d20773/nihms-2017515-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/d777ddccf00e/nihms-2017515-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/8074c08d9e74/nihms-2017515-f0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/46b1c1d20773/nihms-2017515-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/d777ddccf00e/nihms-2017515-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f91/11523066/8074c08d9e74/nihms-2017515-f0003.jpg

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