Backman Ellen, Miniscalco Carmela, Thunberg Gunilla
Department of Social Sciences, Marie Cederschiöld University, Stockholm, Sweden.
Region Halland habilitation Centre, Halmstad, Sweden.
Disabil Rehabil Assist Technol. 2025 Apr;20(3):598-610. doi: 10.1080/17483107.2024.2398606. Epub 2024 Sep 12.
Web-based programmes offer parents of children with communication difficulties promising access to parent-mediated, early interventions. However, empirical evaluations of such programmes are limited. This study focused on parents and used mixed methods to examine the feasibility of ComAlong online.
ComAlong online is a Swedish, self-managed web-resource teaching parents supportive strategies to promote child communication. Data of different types were collected from a total of 71 parents: ten individual parent interviews, 21 pre-questionnaires and 10 post-questionnaires, and finally 50 anonymous digital evaluation surveys. Descriptive statistics and deductive qualitative content analysis were used.
Findings indicate that parents perceived improved child communication and own competence after using the ComAlong online. The most valued parts included podcasts with experts and videos of parent-child interaction. Parents reported that the resource was easy to use, but they wanted to have gained access to the resource when the child was younger. Suggestions for changes included adding a chat function with experts, a parent net forum, and the possibility of creating personalised playlists of videos and podcasts. Evaluation of the research process revealed difficulties in recruiting parents from local child healthcare services and parents of children not yet with a diagnosis.
This study supports the potential for self-managed, web-based resources to disseminate evidence-based parent training for supporting early communication development. Importantly, parents lack individual guidance from experts and contact with other parents. Also, measures need to be made to disseminate the resources within local child healthcare services.
基于网络的项目为有沟通困难儿童的家长提供了有望获得家长介导的早期干预的途径。然而,对此类项目的实证评估有限。本研究聚焦于家长,并采用混合方法来检验ComAlong在线项目的可行性。
ComAlong在线项目是一个瑞典的、家长自主管理的网络资源,向家长传授支持性策略以促进儿童沟通。从总共71位家长那里收集了不同类型的数据:10次个别家长访谈、21份预调查问卷和10份后调查问卷,最后还有50份匿名数字评估调查。采用了描述性统计和演绎性定性内容分析。
研究结果表明,家长在使用ComAlong在线项目后,察觉到孩子的沟通能力有所提高,自身能力也有所提升。最受重视的部分包括专家播客和亲子互动视频。家长们表示该资源易于使用,但他们希望在孩子更小的时候就能获得该资源。改进建议包括增加与专家的聊天功能、家长网络论坛,以及创建视频和播客个性化播放列表的可能性。对研究过程的评估显示,从当地儿童保健服务机构招募家长以及招募尚未确诊儿童的家长存在困难。
本研究支持了家长自主管理的网络资源在传播基于证据的家长培训以支持早期沟通发展方面的潜力。重要的是,家长缺乏专家的个别指导以及与其他家长的联系。此外,需要采取措施在当地儿童保健服务机构内传播这些资源。