Michael Afieharo Igbibia, Olusanya Adeola Adenike, Okoli Chinedu Michael, Martins Bardi, Akintayo Akintunde Joseph, Onwuagha Ijeoma
Department of Plastic, Reconstructive and Aesthetic Surgery, University College Hospital, Ibadan, Oyo State, Nigeria.
Department of Oral and Maxillofacial Surgery, Afidea Medical Centre, Ibadan, Oyo State, Nigeria.
Pan Afr Med J. 2024 Jun 7;48:50. doi: 10.11604/pamj.2024.48.50.42111. eCollection 2024.
the objective of this study was to determine the quality of life (QoL) of the patient with a cleft lip or palate scheduled for surgery.
this analytic multicenter cross-sectional study involved six participating Smile Train Partner Hospitals from five geopolitical zones of the country and three major ethnic groups. Patients with cleft lip or cleft palate aged between 8 to 29 years scheduled for repair were recruited. The main outcome measure was quality of life scores as measured by cleft Q.
thirty-four (females 18, males 16) patients were scheduled for surgery of either cleft lip n=7 (20.6%) or cleft palate n=27 (79.4). Patients scheduled for primary surgeries were more than those for secondary surgeries, 23 (68.7%) vs 10 (30.3%). Of the QoL scales, the speech distress score was the least (56.0 ± 22.6) and the psychological score highest (73.9 ± 15.8). All QoL mean scores except the psychological score fell below normative cleft Q scores. The psychological scores in males (80.9 ± 16.2) were significantly higher than in females (67.7 ± 12.9, p=0.01). Patients for lip repair had lower psychological scores than those for palatal repair (median=59 vs 73, p=0.01). Patients for palate repair demonstrated significantly lower speech function and distress scores than those for lip repair (p=0.01, p<0.01 respectively).
most of the QoL measures in patients with cleft lip and palate in this study fell below normative values. Gender and cleft type affect the quality of life. A larger study is recommended to establish national normative data.
本研究的目的是确定计划接受手术的唇腭裂患者的生活质量（QoL）。
这项多中心分析性横断面研究涉及该国五个地缘政治区的六家微笑列车合作医院以及三个主要民族。招募了年龄在8至29岁之间计划进行修复手术的唇裂或腭裂患者。主要结局指标是通过腭裂Q量表测量的生活质量得分。
34例（女性18例，男性16例）患者计划进行唇裂修复手术（n = 7，20.6%）或腭裂修复手术（n = 27，79.4%）。计划进行初次手术的患者多于二次手术的患者，分别为23例（68.7%）和10例（30.3%）。在生活质量量表中，言语困扰得分最低（56.0±22.6），心理得分最高（73.9±15.8）。除心理得分外，所有生活质量平均得分均低于腭裂Q量表的标准得分。男性的心理得分（80.9±16.2）显著高于女性（67.7±12.9，p = 0.01）。唇裂修复患者的心理得分低于腭裂修复患者（中位数分别为59和73，p = 0.01）。腭裂修复患者的言语功能和困扰得分显著低于唇裂修复患者（分别为p = 0.01，p < 0.01）。
本研究中唇腭裂患者的大多数生活质量指标低于标准值。性别和腭裂类型会影响生活质量。建议开展更大规模的研究以建立全国性的标准数据。
