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Medical costs and hospital utilization for hemophilia A and B urban inpatients in China: a national cross-sectional study.中国城市血友病 A 和 B 住院患者的医疗费用和医院利用情况：一项全国性横断面研究。
BMC Health Serv Res. 2022 Feb 19;22(1):230. doi: 10.1186/s12913-022-07626-x.
2
Genetic causes of haemophilia in women and girls.女性和女童血友病的遗传学病因。
Haemophilia. 2021 Mar;27(2):e164-e179. doi: 10.1111/hae.14186. Epub 2020 Dec 13.
3
Prevalence of FVIII Inhibitors Among Children with Hemophilia A: Experience at the Jordanian Royal Medical Services.血友病 A 患儿中 FVIII 抑制剂的流行率：约旦皇家医疗服务的经验。
Med Arch. 2020 Jun;74(3):187-190. doi: 10.5455/medarh.2020.74.187-190.
4
The World Federation of Hemophilia Annual Global Survey 1999-2018.《世界血友病联盟 1999-2018 年全球年度调查》。
Haemophilia. 2020 Jul;26(4):591-600. doi: 10.1111/hae.14012. Epub 2020 Jun 4.
5
Transfusion-transmitted infections in hemophilia patients who underwent surgical treatment: a study from a single center in north China.接受手术治疗的血友病患者的输血传播感染：来自中国北方一个单中心的研究
Arch Med Sci. 2020 Feb 11;16(2):308-312. doi: 10.5114/aoms.2020.92892. eCollection 2020.
6
Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males: A Meta-analytic Approach Using National Registries.采用国家登记处的荟萃分析方法，确定男性血友病的患病率和出生时患病率。
Ann Intern Med. 2019 Oct 15;171(8):540-546. doi: 10.7326/M19-1208. Epub 2019 Sep 10.
7
A study to determine the prevalence, clinical profile and incidence of formation of inhibitors in patients of hemophilia in North Eastern part of India.一项旨在确定印度东北部血友病患者中抑制剂形成的患病率、临床特征和发生率的研究。
J Family Med Prim Care. 2019 Jul;8(7):2463-2467. doi: 10.4103/jfmpc.jfmpc_316_19.
8
Epidemiological Profile of Hemophilia in Baghdad-Iraq.伊拉克巴格达血友病的流行病学概况
Inquiry. 2019 Jan-Dec;56:46958019845280. doi: 10.1177/0046958019845280.
9
Inhibitors among patients with hemophilia in Basra, Iraq - A single center experience.伊拉克巴士拉血友病患者中的抑制剂——单中心经验
Niger J Clin Pract. 2019 Mar;22(3):416-421. doi: 10.4103/njcp.njcp_388_18.
10
Diagnosis and care of patients with mild haemophilia: practical recommendations for clinical management.轻度血友病患者的诊断和护理：临床管理的实用建议。
Blood Transfus. 2018 Nov;16(6):535-544. doi: 10.2450/2017.0150-17. Epub 2017 Nov 14.

伊拉克济加尔省18岁及以下血友病患者的患病率及临床人口统计学特征

Prevalence of Hemophilia and Clinicodemographic Characteristics of Hemophilic Patients Aged ≤ 18 Years in Thi-Qar, Iraq.

作者信息

Abood Ghada Mansoor, Dehiol Raid Kareem, Mones Hayfaa Mohammed

机构信息

University of Thi-Qar, Thi-Qar, Iraq.

Thi-Qar Health Directorate, Nasiriya, Thi-Qar, Iraq.

出版信息

Glob Pediatr Health. 2024 Sep 13;11:2333794X241280119. doi: 10.1177/2333794X241280119. eCollection 2024.

DOI:10.1177/2333794X241280119
PMID:39281354
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11401012/
Abstract

. This study aims to determine the prevalence of hemophilia in Thi-Qar, Iraq and study clinical and demographic characteristics of patients with hemophilia. . In this cross-sectional study, data were obtained by reviewing all patient medical records and interviewed with the patients and their parents in 2022. The total number of patients enrolled for this study was 110 children. . The prevalence of hemophilia in Thi-Qar was 9.5/100 000 population (18.7/100 000 males). Factor VIII inhibitors were positive in 13.1% of patients with hemophilia A (HA). Target joints were developed among 41.4% and 27.3% of patients with HA and hemophilia B, respectively. Hepatitis C virus was positive in 3% of those with HA. Inhibitors development and arthropathy were more among those with severe disease (22% and 46.3%, respectively). . Hemophilia prevalence in Thi-Qar was higher than the total prevalence in Iraq reported by World Federation of Hemophilia in 2022.

摘要

本研究旨在确定伊拉克济加尔省血友病的患病率，并研究血友病患者的临床和人口统计学特征。在这项横断面研究中，通过查阅2022年所有患者的病历并与患者及其父母进行访谈来获取数据。本研究纳入的患者总数为110名儿童。济加尔省血友病的患病率为9.5/10万人口（男性为18.7/10万）。13.1%的甲型血友病（HA）患者凝血因子VIII抑制物呈阳性。HA患者和乙型血友病患者中分别有41.4%和27.3%出现目标关节。3%的HA患者丙型肝炎病毒呈阳性。重度疾病患者中抑制物形成和关节病的发生率更高（分别为22%和46.3%）。济加尔省的血友病患病率高于世界血友病联盟2022年报告的伊拉克总患病率。