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本文引用的文献

1
Emergency department utilization among pediatric spina bifida patients.小儿脊柱裂患者的急诊科利用率
J Pediatr Rehabil Med. 2019;12(4):375-381. doi: 10.3233/PRM-180561.
2
Association of maternal risk factors with the recent rise of neural tube defects in Canada.母体危险因素与加拿大近期神经管缺陷发生率上升的关联。
Paediatr Perinat Epidemiol. 2019 Mar;33(2):145-153. doi: 10.1111/ppe.12543.
3
Ambulatory Care Use among Patients with Spina Bifida: Change in Care from Childhood to Adulthood.脊髓裂患者的门诊护理使用情况:从儿童期到成年期护理的变化。
J Urol. 2018 Apr;199(4):1050-1055. doi: 10.1016/j.juro.2017.10.040. Epub 2017 Nov 4.
4
Urological Surveillance and Medical Complications in the United States Adult Spina Bifida Population.美国成年脊柱裂患者的泌尿外科监测与医疗并发症
Urology. 2019 Jan;123:287-292. doi: 10.1016/j.urology.2017.08.046. Epub 2017 Sep 19.
5
The transition process of spina bifida patients to adult-centred care: An assessment of the Canadian urology landscape.脊柱裂患者向以成人为主的护理过渡过程:对加拿大泌尿外科现状的评估。
Can Urol Assoc J. 2017 Jan-Feb;11(1-2Suppl1):S88-S91. doi: 10.5489/cuaj.4338.
6
How successful is the transition to adult urology care in spina bifida? A single center 7-year experience.脊柱裂患者向成人泌尿外科护理的过渡有多成功?一项单中心7年的经验。
J Pediatr Urol. 2017 Feb;13(1):40.e1-40.e6. doi: 10.1016/j.jpurol.2016.09.020. Epub 2016 Nov 9.
7
A proposed solution to a urological tightrope walk: The challenge of transition of spina bifida patients from pediatric to adult care in Ontario.一种针对泌尿外科棘手难题的解决方案:安大略省脊柱裂患者从儿科护理向成人护理过渡的挑战。
Can Urol Assoc J. 2016 Sep-Oct;10(9-10):306-310. doi: 10.5489/cuaj.4070.
8
Spina bifida.脊柱裂。
Nat Rev Dis Primers. 2015 Apr 30;1:15007. doi: 10.1038/nrdp.2015.7.
9
Urologic problems in spina bifida patients transitioning to adult care.脊髓裂患者过渡到成人护理的泌尿科问题。
Urology. 2014 Aug;84(2):440-4. doi: 10.1016/j.urology.2014.03.041.
10
Self-management, preventable conditions and assessment of care among young adults with myelomeningocele.患有脊髓脊膜膨出的年轻人的自我管理、可预防疾病及护理评估
Child Care Health Dev. 2011 Nov;37(6):861-5. doi: 10.1111/j.1365-2214.2011.01299.x.

脊柱裂护理转变的影响:一项基于人群的回顾性队列研究,纵向比较从青少年到成年期的结局和医疗保健成本。

The impact of transition of Spina Bifida Care: A retrospective population-based cohort study comparing outcomes and health care costs longitudinally from adolescence into adulthood.

作者信息

Playfair Matthew, McClure James Andrew, Le Britney, Cassidy Caitlin, Wang Peter, Welk Blayne, Dave Sumit

机构信息

Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.

ICES Western, London, Ontario, Canada.

出版信息

Paediatr Child Health. 2023 Jul 5;29(5):280-285. doi: 10.1093/pch/pxad048. eCollection 2024 Aug.

DOI:10.1093/pch/pxad048
PMID:39281356
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11398918/
Abstract

INTRODUCTION

Transition from multidisciplinary paediatric to adult care results in a significant change in the intensity of care provided to patients with spina bifida (SB).

OBJECTIVE

To compare planned and unplanned health care utilization and costs of care of transitioning SB patients.

STUDY DESIGN

Through a retrospective population-based cohort study, patients with SB born in Ontario between 1988 and 1999 were studied using routinely collected data analysed at ICES. Patients were followed longitudinally from age 16 to 22 years with comparisons made between the paediatric baseline year (age 16) to the first 3 years of adulthood (ages 19 to 21). A composite primary outcome of unplanned emergency room (ER) visits, hospitalizations and emergency surgical procedures, was compared before and after transition. Secondary outcomes included these variables individually and estimated health care costs.

RESULTS

In the 299 patients, no significant differences were identified in the composite primary outcome between periods (P = 0.09). Unplanned ER visits (P = 0.004) and emergency surgical procedures (P = 0.02) increased after transition. Despite this, the estimated individual total cost of care declined after transition (P = 0.03). Further, multivariable analysis identified rural residence (RR 1.78, confidence interval [CI] 1.30 to 2.44) and previous urologic surgery (RR 1.91, CI 1.41 to 2.57) as significant predictors of increased need for emergent care and health care costs, respectively.

CONCLUSION

Patients with SB in Ontario have higher rates of ER usage and unplanned surgery after the transition to adult care. While this does not drive an increase in health care costs, improvements in the care of transitioned SB patients, particularly rural patients and those with prior urologic surgery, may decrease the requirement for acute care.

摘要

引言

从多学科儿科护理过渡到成人护理,会导致脊柱裂(SB)患者所接受护理的强度发生显著变化。

目的

比较计划内和计划外的医疗保健利用率以及脊柱裂患者过渡护理的费用。

研究设计

通过一项基于人群的回顾性队列研究,利用在ICES分析的常规收集数据,对1988年至1999年在安大略省出生的脊柱裂患者进行研究。对患者从16岁到22岁进行纵向随访,并比较儿科基线年(16岁)到成年期的前3年(19岁至21岁)的情况。比较了过渡前后计划外急诊室(ER)就诊、住院和急诊外科手术的综合主要结局。次要结局包括这些变量单独的情况以及估计的医疗保健费用。

结果

在299名患者中,各时期之间的综合主要结局未发现显著差异(P = 0.09)。过渡后计划外急诊室就诊(P = 0.004)和急诊外科手术(P = 0.02)有所增加。尽管如此,过渡后估计的个人护理总费用有所下降(P = 0.03)。此外,多变量分析确定农村居住(风险比[RR] 1.78,置信区间[CI] 1.30至2.44)和先前的泌尿外科手术(RR 1.91,CI 1.41至2.57)分别是紧急护理需求增加和医疗保健费用增加的显著预测因素。

结论

安大略省的脊柱裂患者在过渡到成人护理后急诊室使用率和计划外手术率较高。虽然这并未导致医疗保健费用增加,但改善脊柱裂患者过渡护理,特别是农村患者和先前接受过泌尿外科手术的患者的护理,可能会减少急性护理的需求。