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“他们认为我们只是在上帝的候诊室里”:关于中风幸存者身份孤独感的话语研究

'They think we're just in God's waiting room': A discursive study on identity aloneness in stroke survivors.

作者信息

Jefferson Lewis, Dunne Stephen

机构信息

Northumbria University, UK.

出版信息

Health (London). 2025 May;29(3):316-334. doi: 10.1177/13634593241279207. Epub 2024 Sep 19.

Abstract

This paper examines the rhetorical strategies used by stroke survivors to attend to identity aloneness, a phenomenon in which individuals experience a sense of disconnect from others as a consequence of identity change, for which stroke is known as an antecedent. Three stroke survivors, and their spouses, were interviewed about their stroke, social support, and experiences with loneliness and identity change. The data was transcribed using a simplified version of the Jeffersonian method and analysed using a critical discursive psychological approach. This made it possible to examine the way in which the psychological business of identity aloneness was managed in participants' talk via discursive devices such as metaphors and category entitlement, while also leaving room to consider how broader societal discourses were drawn upon. The analysis revealed two critical ways in which participants attended to the issue of identity aloneness: (1) by crafting and occupying a position of resilience; (2) by managing the impact of the post-stroke social world on their identities. These findings offer insight into how the issue of identity aloneness is made sense of by stroke survivors in the context of a discussion with an interviewer. Finally, findings informed future directions for research, including developing a comprehensive theory of identity aloneness using a grounded theory approach and developing and validating a psychometric measure of identity aloneness to be applied in a rehabilitative setting.

摘要

本文探讨了中风幸存者用来应对身份孤独感的修辞策略。身份孤独感是一种个体因身份变化而与他人产生脱节感的现象,中风被认为是其诱因。研究采访了三名中风幸存者及其配偶,了解他们的中风情况、社会支持以及孤独感和身份变化的经历。数据采用简化版的杰斐逊方法进行转录,并运用批判性话语心理学方法进行分析。这使得研究人员能够通过隐喻和类别赋予等话语手段,考察参与者在谈话中处理身份孤独心理问题的方式,同时也为思考如何借鉴更广泛的社会话语留出了空间。分析揭示了参与者应对身份孤独问题的两种关键方式:(1)通过塑造并占据坚韧的立场;(2)通过应对中风后社会环境对其身份的影响。这些发现为了解中风幸存者在与采访者讨论的背景下如何理解身份孤独问题提供了见解。最后,研究结果为未来的研究方向提供了参考,包括运用扎根理论方法构建身份孤独的综合理论,以及开发和验证一种适用于康复环境的身份孤独心理测量工具。

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