Hans Christian Andersen Children's Hospital, Odense University Hospital, Denmark; Department of Clinical Research, Faculty of Health Sciences, University of Southern Denmark, Denmark; Centre for Compassion in Healthcare, Department of Clinical Research, Department of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Denmark.
Hans Christian Andersen Children's Hospital, Odense University Hospital, Denmark; Department of Clinical Research, Faculty of Health Sciences, University of Southern Denmark, Denmark; Centre for Compassion in Healthcare, Department of Clinical Research, Department of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Denmark; Centre for Innovative Medical Technology, Odense University Hospital, University of Southern Denmark, Denmark; Centre for Health Services Research, The University of Queensland, Australia; Department of Paediatrics and Adolescent Medicine, Unit for Research and Development in Nursing for Children and Young People, Aarhus University Hospital, Denmark.
Eur J Oncol Nurs. 2024 Oct;72:102683. doi: 10.1016/j.ejon.2024.102683. Epub 2024 Aug 21.
Throughout a child's cancer treatment, health professionals (HPs) constitute an important source of support for the entire family. However, the understanding of their presence and essential attributes is unclear. This study explored HPs' presence and attributes in connecting with parents and identified facilitators and barriers for connectedness.
This qualitative study was undertaken in a compassion paradigm, designed and guided by Heidegger's and Gadamer's philosophical concepts, and employed compassionate methods. Data were generated through ethnographic fieldwork (144 h), parent interviews (n = 16), and focus group interviews with parents of cancer survivors (n = 2) and HPs (n = 3). Inductive content analysis was utilised to analyse data.
Many HP-parent contacts developed into close, genuine connections based on HPs' great commitment and ability to balance the act of closeness and distance. This involved HPs' sensitivity, humanity, humility, honest communication, genuine interest, and high clinical competencies; all promoting trust. Adapting and ending close relationships when approaching the end of treatment had little attention and was difficult for families, making some find ways of keeping contact on a personal level. Barriers disclosed were structural work changes, busyness, dishonest, poor, or lack of communication, and poor or lack of interpersonal chemistry.
Human interconnectedness is powerful in long-term professional relationships and strengthens the parents. More research and clinical attention are needed to develop the understanding and help target actions toward building, maintaining, and ending relationships. Further, cultivating being present in the moment, through mindfulness and compassion, may support HPs in maintaining a receptive mind and a caring role.
在儿童癌症治疗过程中，卫生专业人员（HPs）是整个家庭的重要支持来源。然而，他们的存在和基本属性的理解并不清楚。本研究探讨了 HPs 与父母联系的存在和属性，并确定了联系的促进因素和障碍。
这项定性研究是在同情范式中进行的，设计和指导遵循了海德格尔和伽达默尔的哲学概念，并采用了同情方法。通过民族志实地工作（144 小时）、家长访谈（n=16）和癌症幸存者家长（n=2）和 HPs（n=3）的焦点小组访谈来生成数据。使用归纳内容分析来分析数据。
许多 HP-家长接触发展成亲密、真诚的关系，这基于 HPs 的巨大承诺和平衡亲密和距离行为的能力。这涉及到 HPs 的敏感性、人性、谦逊、诚实沟通、真诚兴趣和高临床能力；所有这些都促进了信任。当接近治疗结束时，适应和结束亲密关系很少受到关注，对家庭来说也很困难，这使得一些人找到保持个人联系的方式。揭示的障碍包括结构性工作变化、忙碌、不诚实、沟通不良或缺乏、人际化学不良或缺乏。
人际联系在长期的专业关系中具有强大的力量，可以增强家长的力量。需要进一步的研究和临床关注，以发展理解并帮助针对建立、维持和结束关系的行动。此外，通过正念和同情来培养当下的存在，可能会支持 HPs 保持接受的心态和关怀的角色。
