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让不可见变为可见:慢性病如何改变叙事与自我民族志视角。

Making the Invisible Visible: How Chronic Illness Changes Narrative and the Autoethnographic Perspective.

作者信息

Rumsey Suzanne Kesler

机构信息

Department of English and Linguistics, Purdue University Fort Wayne.

出版信息

Health Commun. 2025 Jul;40(8):1582-1584. doi: 10.1080/10410236.2024.2407702. Epub 2024 Sep 25.

Abstract

Autoethnography and narrative have long been used in health research, particularly as tools for understanding and exploring personal experiences with illness. As an autoethnographer, I employed this methodology in almost all of my previous academic work, and I thought I knew it well. However, when I approached narrating and investigating my rare, invisible, chronic illness, my understanding of the methodology was challenged; the emic and etic perspectives are complicated when sharing what is inside my own body.

摘要

自民族志和叙事长期以来一直应用于健康研究中,尤其是作为理解和探索疾病个人经历的工具。作为一名自民族志研究者,我在之前几乎所有的学术工作中都采用了这种方法,并且我认为自己对它非常了解。然而,当我着手叙述和研究自己罕见的、无形的慢性病时,我对这种方法的理解受到了挑战;当分享我自己身体内部的情况时,主位和客位视角变得复杂起来。

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