Rinde Elisabeth Rønning, Anderzén-Carlsson Agneta, Jahnsen Reidun Birgitta, Andersen Randi Dovland
Division of Habilitation, Telemark Hospital Trust, 3710 Skien, Norway.
Research Center for Habilitation and Rehabilitation Models & Services (CHARM), Department of Public Health, Institute of Health and Society, Faculty of Medicine, University of Oslo, 0373 Oslo, Norway.
Children (Basel). 2024 Aug 29;11(9):1055. doi: 10.3390/children11091055.
: The aim of this study is to explore and compare experiences of pain management strategies for children with CP from the perspectives of children themselves and their parents. : A secondary inductive analysis of previously collected qualitative data was performed. Fourteen children with CP and one parent of each child were interviewed separately about the management of the child's pain. A dyadic data analysis was used to compare parents' and children's perspectives. : The main thematic categories of pain management identified were self-care, psychological strategies, physical interventions and professional treatment. Experiences described by the child and parent differed within all participating dyads but to different degrees. On a group level, children described more use of psychological strategies than parents did. Parents described more professional treatment strategies. : Parents and children described different experiences of pain management strategies, and both perspectives are needed to understand the child's situation.
本研究的目的是从儿童自身及其父母的角度探索和比较脑瘫患儿疼痛管理策略的经验。对先前收集的定性数据进行了二次归纳分析。分别采访了14名脑瘫患儿及其每位患儿的一位家长，了解患儿疼痛的管理情况。采用二元数据分析来比较家长和孩子的观点。确定的疼痛管理主要主题类别为自我护理、心理策略、物理干预和专业治疗。在所有参与的二元组中，孩子和家长描述的经历有所不同，但程度各异。在群体层面上，孩子描述使用心理策略的情况比家长更多。家长描述的专业治疗策略更多。家长和孩子描述了不同的疼痛管理策略经验，需要双方的观点来了解患儿的情况。
