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家长在家中照顾并模拟喂养患有食管闭锁的婴儿,等待重建手术。

Parents caring and sham-feeding their child born with Esophageal atresia at home while waiting for reconstructive surgery.

机构信息

Department of Pediatric Surgery, Karolinska University Hospital, 171 76, Stockholm, Sweden.

Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.

出版信息

Pediatr Surg Int. 2024 Sep 29;40(1):257. doi: 10.1007/s00383-024-05839-1.

DOI:10.1007/s00383-024-05839-1
PMID:39342528
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11439852/
Abstract

PURPOSE

For children with Esophageal atresia who have to wait for reconstructive surgery, long hospital stay, delayed introduction of oral feeds and hampered oro-motor function has traditionally been draw-backs for this treatment as the patients have minimal training of oro-motor function while waiting for surgery. In this paper, we present the concept of sham-feed at home awaiting reconstructive surgery with the aim to obliviate these problems. The aim was to describe the characteristics of patients with Esophageal atresia waiting for reconstructive surgery sham-feeding at home by their parents and further describe adverse events that arose.

METHODS

The study is a retrospective descriptive single center study on all children with a delayed reconstruction of Esophageal atresia who was sham-fed by their parents at home before reconstructive surgery between January 2010 and January 2023 at the Karolinska University Hospital, Stockholm.

RESULTS

Nine patients where home waiting for reconstructive surgery for a median of 72 days. No adverse events were reported related to the sham-feed procedure at home. The children had reconstructive surgery at a median 120 days of age. Five of the children ate full meals orally day 8-27 after surgery. Two children ate fully before 1 year after surgery. Two children had surgery less than 1 year ago and were not eating fully orally at the time of data collection.

CONCLUSION

Sham-feeding at home by the parents was safe and feasible with the benefits of a prolonged time out of hospital awaiting reconstructive surgery.

摘要

目的

对于需要等待重建手术的食管闭锁患儿,长时间住院、延迟口服喂养和口腔运动功能受限一直是这种治疗方法的缺点,因为患儿在等待手术期间几乎没有接受口腔运动功能训练。本文介绍了在等待重建手术期间在家中进行模拟喂养的概念,旨在消除这些问题。目的是描述在家中等待重建手术进行模拟喂养的食管闭锁患儿的特征,并进一步描述出现的不良事件。

方法

本研究是一项回顾性描述性单中心研究,纳入了自 2010 年 1 月至 2023 年 1 月期间在斯德哥尔摩卡罗林斯卡大学医院接受父母在家中进行模拟喂养的所有食管闭锁延迟重建患儿。

结果

9 名患儿在家中等待重建手术,中位时间为 72 天。在家中进行模拟喂养期间,没有报告与该过程相关的不良事件。患儿的中位重建手术年龄为 120 天。术后第 8-27 天,5 名患儿开始经口进全餐。2 名患儿在术后 1 年内完全经口进食。2 名患儿在不到 1 年前接受了手术,在数据收集时尚未完全经口进食。

结论

父母在家中进行模拟喂养是安全且可行的,可以延长患儿在院外等待重建手术的时间。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/5dfafacd188e/383_2024_5839_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/50d50b003069/383_2024_5839_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/f68a01615ab2/383_2024_5839_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/5dfafacd188e/383_2024_5839_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/50d50b003069/383_2024_5839_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/f68a01615ab2/383_2024_5839_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/78bb/11439852/5dfafacd188e/383_2024_5839_Fig3_HTML.jpg

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Prevalence of Mental Health Problems, Associated Factors, and Health-Related Quality of Life in Children with Long-Gap Esophageal Atresia in Sweden.瑞典长段型食管闭锁患儿心理健康问题的流行情况、相关因素及健康相关生活质量。
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Parents' experiences of feeding children born with oesophageal atresia/tracheo-oesophageal fistula.
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J Pediatr Surg. 2022 Dec;57(12):792-799. doi: 10.1016/j.jpedsurg.2022.08.013. Epub 2022 Aug 24.
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Fiberoptic endoscopic evaluation of swallowing (FEES) study: the first report in children to evaluate the oropharyngeal dysphagia after esophageal atresia repair.纤维内镜吞咽功能评估(FEES)研究:评估食管闭锁修复术后口咽吞咽障碍的儿童首例报告。
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