Moloney Gail, Ghelani Dhaval, Lakshmanan Ramanathan, Upcroft Leah, Hutchinson Marie, Norton Maddison, Sutherland Michael, Walker Iain, Rienks Suzanne
Southern Cross University, Coffs Harbour, New South Wales, Australia.
Shrimad Rajchandra Mission Dharampur Australia, Sydney, New South Wales, Australia.
Intern Med J. 2024 Dec;54(12):1952-1959. doi: 10.1111/imj.16533. Epub 2024 Oct 1.
Transplant success rates can increase when organs and tissues are matched within ethnic communities, but how well are the processes around organ donation understood by discrete ethnic communities in Australia? We investigated this in relation to one ethnic group, the Australian-Indian community in Sydney.
A culturally appropriate survey and dissemination strategy was co-created with Indian community members through an Advisory Panel. Items were informed by a thematic analysis of cultural beliefs shared through the advisory panel discussions and measured awareness and practices associated with organ donation and transplantation and beliefs about organ donation and registration. Donation information was provided at the end.
Two hundred and thirty-eight participants completed the survey. Hinduism along with Tamil and Gujarati were the most frequently identified religious and cultural backgrounds. The processes around organ donation were not well known, and Australian Organ Donor Register registration rates were below the national average. Principal component analysis revealed positive, social, medical trust, concerns, and cardiac and brain death belief factors. Doctors played a key role in generating trust in the donation system, decisions about organ donation were embedded in family and community, and family discussion was related to increased registration. Registered participants reported higher scores on medical trust beliefs, which also predicted family discussion.
The information needed to understand the process of organ donation and registration in Australia is not embedded in this community, highlighting the need for programmes to be tailored to each culturally diverse community rather than culturally diverse communites in general. Doctors and the advisory panels are pivotal in this process.
当器官和组织在种族群体内部进行匹配时，移植成功率会提高，但澳大利亚不同的种族群体对器官捐赠过程的了解程度如何呢？我们针对悉尼的澳大利亚-印度裔这一种族群体对此进行了调查。
通过一个咨询小组与印度社区成员共同制定了一项符合文化背景的调查和传播策略。调查项目是根据对咨询小组讨论中分享的文化信仰进行的主题分析确定的，测量了与器官捐赠和移植相关的意识和做法以及对器官捐赠和登记的看法。最后提供了捐赠信息。
238名参与者完成了调查。印度教以及泰米尔语和古吉拉特语是最常被提及的宗教和文化背景。器官捐赠过程并不为人熟知，澳大利亚器官捐赠登记率低于全国平均水平。主成分分析揭示了积极、社会、医疗信任、担忧以及心脏和脑死亡信仰因素。医生在建立对捐赠系统的信任方面发挥了关键作用，器官捐赠的决定植根于家庭和社区，并且家庭讨论与登记率的提高有关。已登记的参与者在医疗信任信念方面得分较高，这也预示着会进行家庭讨论。
澳大利亚这个社区并不了解器官捐赠和登记过程所需的信息，这凸显了需要针对每个文化多元的社区而非一般的文化多元社区量身定制相关项目。医生和咨询小组在这一过程中至关重要。
