Makeswaran Punitha, Shah Shamsul Azhar, Safian Nazarudin
Department of Public Health Medicine, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.
Am J Trop Med Hyg. 2024 Oct 1;111(6):1280-1289. doi: 10.4269/ajtmh.24-0224. Print 2024 Dec 4.
Tuberculosis (TB) occurs as one of the highest in the state of Selangor, Malaysia and its causes are currently underexplored especially from patients' perspectives of the disease. This study assesses perspectives from patients in relations to determinants of delayed presentation, diagnosis, and treatment of TB. The study utilises a qualitative methodology involving focus group discussions and in-depth interviews with patients selected based on specific inclusion and exclusion criteria. The research covered components which include social demographic, sociocultural factors, health-seeking behaviors, social support and resources, previous knowledge and experience as a TB patient, and treatment pathway. Thematic analysis was performed using NVivo 12 analysis software to interpret the data. This study aims to identify key barriers and facilitators of prompt presentation and diagnosis of TB patients. Results revealed that socioeconomic status, challenges faced during TB diagnosis and treatment, knowledge of TB, patient and healthcare-related factors, and health-seeking behaviours were the main emerging themes. Improvements are required in the areas of access to healthcare facilities, minimizing cost, providing specific clinics and proximity of health facilities to facilitate a prompt response, increasing capacity to isolate infected persons, and provision of adequate treatment. It is revealed that financial constraints, inaccessibility and long distance to healthcare facilities, poor knowledge of TB, and lack of family and social support contributed to delayed TB presentation and diagnosis. Findings from this study can be utilized to develop effective, locally tailored interventions to address delayed presentation and diagnosis of TB patients in the nation.
结核病(TB)在马来西亚雪兰莪州的发病率位居前列,但其病因目前尚未得到充分研究,尤其是从患者对该疾病的看法角度。本研究评估了患者对结核病延迟就诊、诊断和治疗的决定因素的看法。该研究采用定性方法,包括焦点小组讨论和对根据特定纳入和排除标准选择的患者进行深入访谈。研究涵盖了社会人口统计学、社会文化因素、求医行为、社会支持和资源、作为结核病患者的既往知识和经验以及治疗途径等方面。使用NVivo 12分析软件进行主题分析以解释数据。本研究旨在确定结核病患者及时就诊和诊断的关键障碍和促进因素。结果显示,社会经济地位、结核病诊断和治疗期间面临的挑战、结核病知识、患者和医疗保健相关因素以及求医行为是主要出现的主题。在获得医疗设施、降低成本、提供特定诊所以及医疗设施的便利性以促进及时响应、提高隔离感染者的能力以及提供充分治疗等方面需要改进。结果表明,经济限制、难以获得医疗设施以及距离医疗设施较远、对结核病的了解不足以及缺乏家庭和社会支持导致了结核病就诊和诊断的延迟。本研究的结果可用于制定有效的、适合当地情况的干预措施,以解决该国结核病患者就诊和诊断延迟的问题。