儿科姑息治疗中医疗保健专业人员制定个体护理计划的目的：一项定性研究。
The purpose of an individual care plan in pediatric palliative care according to healthcare professionals: a qualitative study.
机构信息
University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.
Center of Expertise in Palliative Care Utrecht, Julius Center of Health and Primary Care, UMC Utrecht, Universiteitsweg 100, Utrecht, 3584 CG, the Netherlands.
出版信息
BMC Palliat Care. 2024 Oct 4;23(1):236. doi: 10.1186/s12904-024-01569-2.
BACKGROUND
To ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual Care Plan (ICP) for PPC was developed. However, in practice, the ICP for PPC is not used for all children in need of PPC. Insight into why, for which problem and for which children HCPs wish to use an ICP in PPC is therefore necessary to assure that the ICP can be fully implemented in practice.
METHODS
Two semi-structured focus group interviews were held with 15 experienced healthcare professionals in PPC. Data were thematically analyzed.
RESULTS
Participants wish to use an ICP to collaboratively establish a plan with parents for the current and future care and treatment of the child. By doing so, they hope to achieve coordination and continuity of care, to achieve shared decision-making, and to support parents and other healthcare professionals in the care of the child. Participants think the ICP could also be used in the care for children with complex chronic conditions.
CONCLUSION
The purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC was developed. Future research should focus on whether the use of an ICP in PPC practice can achieve these purposes.
背景
为了确保高质量的儿科姑息治疗（PPC），并使医疗保健专业人员（HCP）能够为患有危及生命或生命有限的疾病的个体儿童及其家庭提供以患者为中心的护理，制定了 PPC 的个人护理计划（ICP）。然而，在实践中，并非所有需要 PPC 的儿童都使用 PPC 的 ICP。因此，有必要了解 HCP 希望在 PPC 中使用 ICP 的原因、问题和儿童，以确保 ICP 能够在实践中得到充分实施。
方法
对 15 名具有 PPC 经验的医疗保健专业人员进行了两次半结构化焦点小组访谈。对数据进行了主题分析。
结果
参与者希望使用 ICP 与父母共同制定当前和未来的儿童护理和治疗计划。通过这样做，他们希望实现护理的协调和连续性，实现共同决策，并支持父母和其他医疗保健专业人员照顾孩子。参与者认为 ICP 也可以用于患有复杂慢性疾病的儿童的护理。
结论
医疗保健专业人员希望在 PPC 中使用 ICP 的目的比开发 PPC 的 ICP 的目的更广泛。未来的研究应重点关注在 PPC 实践中使用 ICP 是否可以实现这些目的。
Zotero 插件