Varghese Anjali, Berry Diane S, Ghanem Ali, Hernandez Nora C, Louis Elan D
Department of Neurology, University of Texas Southwestern Medical Center, Dallas, TX, USA.
Department of Neurology, University of Texas Southwestern Medical Center, 5323 Harry Hines Blvd, Dallas, TX 75390, USA.
Ther Adv Neurol Disord. 2024 Oct 7;17:17562864241271994. doi: 10.1177/17562864241271994. eCollection 2024.
Although managing symptoms is paramount for both essential tremor (ET) patients and their healthcare providers, studies of treatment satisfaction are surprisingly lacking.
We evaluated the satisfaction of patients who used a range of treatments and assessed the relation of a wide array of factors to satisfaction.
One hundred four ET participants (age = 74.5 ± 10.2 years) completed a battery of self-report items. These included demographic information, measures of tremor and clinical history, psychological state, current ET treatment, and a series of questions about satisfaction with treatment.
Analyses of responses to the four current treatment satisfaction questions revealed that the proportion of participants who were satisfied ranged from 35.0% to 57.3% (i.e., approximately 1/3 to 1/2); conversely, the proportion who were dissatisfied ranged from 9.2% to 37.0%. The remainder were neutral. Higher satisfaction levels were observed in participants who were included in treatment selection and who had undergone deep brain stimulation surgery, 's < 0.05. Lower levels of satisfaction were found in participants with a negative psychological state, higher self-rated tremor severity, head/voice/jaw tremors, and more severe physical side effects; and who used botulinum toxin therapy, 's < 0.05.
Between 1/3 and 1/2 of patients were satisfied with their treatment, whereas up to 1/3 were dissatisfied. In this initial exploration of correlates of treatment satisfaction in ET patients, we identified a number of associations between satisfaction and clinical, psychological and treatment variables. Additional research is warranted to further explore the nature of these relations over time.
尽管对特发性震颤（ET）患者及其医护人员来说，控制症状至关重要，但令人惊讶的是，关于治疗满意度的研究却很缺乏。
我们评估了使用一系列治疗方法的患者的满意度，并评估了一系列因素与满意度之间的关系。
104名ET参与者（年龄 = 74.5 ± 10.2岁）完成了一系列自我报告项目。这些项目包括人口统计学信息、震颤测量和临床病史、心理状态、当前的ET治疗方法，以及一系列关于治疗满意度的问题。
对四个当前治疗满意度问题的回答分析显示，满意的参与者比例在35.0%至57.3%之间（即大约三分之一到二分之一）；相反，不满意的比例在9.2%至37.0%之间。其余为中立态度。参与治疗选择的参与者以及接受过脑深部电刺激手术的参与者满意度较高，P < 0.05。心理状态消极、自我评定的震颤严重程度较高、头部/声音/下颌震颤以及身体副作用更严重的参与者满意度较低；以及使用肉毒杆菌毒素疗法的参与者满意度较低，P < 0.05。
三分之一到二分之一的患者对其治疗感到满意，而多达三分之一的患者不满意。在对ET患者治疗满意度相关因素的初步探索中，我们确定了满意度与临床、心理和治疗变量之间的一些关联。有必要进行更多研究以随着时间进一步探索这些关系的本质。
