Knopes Julia
Case Western Reserve University School of Medicine.
AJOB Neurosci. 2025 Jan-Mar;16(1):20-31. doi: 10.1080/21507740.2024.2412549. Epub 2024 Oct 10.
Scholarship in neuroethics and related disciplines has long reflected on the value of different conceptual models of disability and impairment. While this theoretical work is valuable, centering the voices of people with mental health conditions in neuroethics research can help us better understand how such models apply in everyday people's lives. Drawing on qualitative data from a study on mental health peer providers' lived experiences of recovery, this paper will demonstrate that peers borrow from both a neurodiversity framework and the medical model of disability, though their feelings toward the two models were often complex and ambivalent. These findings advance neuroethics by indicating that future research and clinical practice should take a nuanced approach to responding to the needs of people with mental health conditions and turn to peers as experts, honoring their values and recognizing both the promise and pitfalls of living with a mental health condition.
神经伦理学及相关学科的学术研究长期以来一直在思考不同残疾和损伤概念模型的价值。虽然这项理论工作很有价值,但在神经伦理学研究中以精神健康状况人群的声音为中心,有助于我们更好地理解这些模型在普通人生活中的应用方式。本文借鉴了一项关于精神健康同伴提供者康复生活经历研究的定性数据,将证明同伴们借鉴了神经多样性框架和残疾医学模型,尽管他们对这两种模型的感受往往复杂且矛盾。这些发现推动了神经伦理学的发展,表明未来的研究和临床实践应该采取细致入微的方法来回应精神健康状况人群的需求,并将同伴视为专家,尊重他们的价值观,认识到患有精神健康状况所带来的希望和困境。