中国大陆慢性脊髓损伤患者中患者激活量表（PAM - 13）的验证

Validation of the Patient Activation Measure (PAM-13) among individuals with chronic spinal cord injury in mainland China.

作者信息

Xie Hai-Xia, Wu Ai-Rong, Xu Zi-Han, Zhang Qi, Wang Xin-Yu, Yu Hao, Li Nan, Wei Yan, Li Xiao-Hong, Zhai Hua, Chang Feng-Shui

机构信息

Shanghai Yangzhi Rehabilitation Hospital (Shanghai Sunshine Rehabilitation Center), School of Medicine, Tongji University, Shanghai, China.

School of Public Health, Fudan University, Shanghai, China.

出版信息

J Spinal Cord Med. 2024 Oct 11:1-11. doi: 10.1080/10790268.2024.2391594.

DOI:10.1080/10790268.2024.2391594

PMID:39392460

Abstract

CONTEXT/OBJECTIVE: The 13-item Patient Activation Measure (PAM-13) is the most widely used generic patient activation measure, but spinal cord injury (SCI) related psychometric evaluation of PAM-13 has not been explored globally. This study aimed to assess the validity of the Chinese version of the PAM-13 (PAM-13-C) for individuals with chronic spinal cord injury (CSCI).

DESIGN

Cross-sectional study.

SETTING

Shanghai Sunshine Rehabilitation Center, and some participants were recruited in a WeChat group (the most commonly used social media platform in China).

PARTICIPANTS

284 individuals with spinal cord injury who had lived with the injury for ≥0.5 year.

INTERVENTIONS

NA.

OUTCOME MEASURES

The PAM-13-C, global QoL, seven-item generalized anxiety disorder scale (GAD-7) and nine-item patient health questionnaire (PHQ-9), and General Self-Efficacy Scale (GSES) were used.

RESULTS

The mean (SD) PAM-13-C score was 57.4 (16.5). The highest percentage of NA could be observed in item 9 (12.0%). Floor and ceiling effects of the total scores of PAM-13-C were small (0.7% and 6.7%), but a ceiling effect could be observed among all items. Exploratory Factor Analysis supported a one-factor model of the PAM-13-C (CFI = 0.97; RMSEA = 0.07). Construct validity was established through correlation analysis among the PAM-13-C, GAD-7/PHQ-9, global QoL, and GSES. The PAM-13-C demonstrated excellent internal consistency (Cronbach's = 0.95) and acceptable test-retest reliability.

CONCLUSION

The PAM-13-C is a reliable and valid measure of patient activation for individuals with CSCI in China.

摘要

背景/目的：13项患者激活量表（PAM - 13）是使用最广泛的通用患者激活量表，但全球尚未对脊髓损伤（SCI）患者的PAM - 13进行相关心理测量学评估。本研究旨在评估中文版PAM - 13（PAM - 13 - C）在慢性脊髓损伤（CSCI）患者中的有效性。

设计

横断面研究。

地点

上海阳光康复中心，部分参与者通过微信群（中国最常用的社交媒体平台）招募。

参与者

284例脊髓损伤患者，受伤时间≥0.5年。

干预措施

无。

观察指标

使用PAM - 13 - C、总体生活质量、七项广泛性焦虑障碍量表（GAD - 7）、九项患者健康问卷（PHQ - 9）和一般自我效能量表（GSES）。

结果

PAM - 13 - C的平均（标准差）得分为57.4（16.5）。第9项中“无回答”的比例最高（12.0%）。PAM - 13 - C总分的地板效应和天花板效应较小（分别为0.7%和6.7%），但各条目均存在天花板效应。探索性因子分析支持PAM - 13 - C的单因素模型（CFI = 0.97；RMSEA = 0.07）。通过PAM - 13 - C、GAD - 7/PHQ - 9、总体生活质量和GSES之间的相关性分析建立了结构效度。PAM - 13 - C显示出良好的内部一致性（Cronbach's α = 0.95）和可接受的重测信度。