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“他只是希望有人能倾听他并聆听他的心声”:焦虑症自闭症青少年获得优质心理医疗服务的障碍与促进因素

"He Just Wants Someone to Hear Him and Listen to Him": Barriers and Facilitators to Autistic Youth with Anxiety Receiving Quality Mental Healthcare.

作者信息

Delgado Daylin, LaPoint Shannon C, Simmons Grace Lee, Heinly Julia M, Shepherd de Whitney S, Kiernan Bridgett, Brookman-Frazee Lauren, Storch Eric A, Maddox Brenna B

机构信息

TEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.

Department of Psychology, University of Georgia, Athens, USA.

出版信息

J Autism Dev Disord. 2024 Oct 12. doi: 10.1007/s10803-024-06574-1.

DOI:10.1007/s10803-024-06574-1
PMID:39395124
Abstract

About half of autistic youth present with clinically interfering anxiety. Psychotherapies with exposure-focused elements are effective in academic clinical settings and controlled trials. However, there is relatively less research examining the implementation of modified interventions for autistic youth with anxiety in community mental health settings. The current study explores community members' perceptions of barriers and facilitators that impact autistic youth with anxiety's receipt of quality mental health services in their community. Semi-structured interviews were conducted with 15 autistic youth, 15 caregivers of autistic youth, 11 community mental health clinicians, and 8 community mental health clinic leaders. Interviews were analyzed thematically. Participants shared their experiences with facilitators and barriers to autistic youth with anxiety receiving quality mental healthcare. Themes that emerged include (1) characteristics of the autistic youth, (2) engagement of autistic youth and caregivers, (3) building rapport between providers, autistic youth, and caregivers, (4) access to mental health services, (5) intervention fit, and (6) provider characteristics. Based on participants' perspectives and suggestions, future directions for anxiety treatment programs tailored for autistic youth include building more time into the intervention sessions to build rapport, incorporating autistic youth's preferences into provider matches, and providing families with more psychoeducation.

摘要

约一半的自闭症青少年存在临床上造成干扰的焦虑症状。具有暴露聚焦元素的心理治疗方法在学术临床环境和对照试验中是有效的。然而,在社区心理健康环境中,针对患有焦虑症的自闭症青少年实施改良干预措施的研究相对较少。当前的研究探讨了社区成员对影响患有焦虑症的自闭症青少年在其社区获得优质心理健康服务的障碍和促进因素的看法。对15名自闭症青少年、15名自闭症青少年的照顾者、11名社区心理健康临床医生和8名社区心理健康诊所负责人进行了半结构化访谈。对访谈进行了主题分析。参与者分享了他们在患有焦虑症的自闭症青少年获得优质心理保健方面的促进因素和障碍的经历。出现的主题包括:(1)自闭症青少年的特征;(2)自闭症青少年及其照顾者的参与度;(3)提供者、自闭症青少年及其照顾者之间建立融洽关系;(4)获得心理健康服务的机会;(5)干预适配性;(6)提供者特征。基于参与者的观点和建议,为自闭症青少年量身定制的焦虑治疗项目的未来方向包括在干预环节中安排更多时间来建立融洽关系,将自闭症青少年的偏好纳入提供者匹配过程,并为家庭提供更多的心理教育。

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本文引用的文献

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Treatment Engagement as a Predictor of Therapy Outcome Following Cognitive Behaviour Therapy for Autistic Children.自闭症儿童认知行为疗法治疗结果的预测因素:治疗参与度。
J Autism Dev Disord. 2024 Oct;54(10):3575-3586. doi: 10.1007/s10803-023-06083-7. Epub 2023 Aug 29.
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Longitudinal follow-up of subsequent psychiatric comorbidities among children and adolescents with autism spectrum disorder.对自闭症谱系障碍儿童和青少年后续精神共病的纵向随访。
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Let's Talk About Autistic Autism Researchers.
让我们聊聊自闭症研究者。
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4
"Autism research is in crisis": A mixed method study of researcher's constructions of autistic people and autism research.“自闭症研究正处于危机之中”:一项关于研究人员对自闭症患者及自闭症研究认知建构的混合方法研究
Front Psychol. 2022 Nov 24;13:1050897. doi: 10.3389/fpsyg.2022.1050897. eCollection 2022.
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Prevalence and Phenomenology of Anxiety in Preschool-Aged Children with Autism Spectrum Disorder.自闭症谱系障碍学龄前儿童焦虑的患病率和表现。
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Sensory-Adapted Dental Environment for the Treatment of Patients with Autism Spectrum Disorder.用于治疗自闭症谱系障碍患者的感官适应型牙科环境
Children (Basel). 2022 Mar 10;9(3):393. doi: 10.3390/children9030393.
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A blind spot in mental healthcare? Psychotherapists lack education and expertise for the support of adults on the autism spectrum.精神保健领域的盲点?心理治疗师缺乏对自闭症谱系成人的支持的教育和专业知识。
Autism. 2022 Aug;26(6):1509-1521. doi: 10.1177/13623613211057973. Epub 2021 Nov 26.
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The relationship between social and academic outcomes and anxiety for children and adolescents on the autism spectrum: A systematic review.自闭症谱系儿童和青少年的社会和学业成绩与焦虑之间的关系:系统评价。
Clin Psychol Rev. 2021 Dec;90:102086. doi: 10.1016/j.cpr.2021.102086. Epub 2021 Sep 24.
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Where are US outpatient mental health facilities that serve children with autism spectrum disorder? A national snapshot of geographic disparities.为自闭症谱系障碍儿童提供服务的美国门诊心理健康机构在哪里?全国地理差异快照。
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A Systematic Review of Mental Health Interventions for ASD: Characterizing Interventions, Intervention Adaptations, and Implementation Outcomes.自闭症的心理健康干预措施系统评价:干预措施、干预调整和实施结果的特征。
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