Kasprzak Julia, Goering Timothy, Berger-Thürmel Karin, Kratzer Vanessa, Prompinit Wuthichai, Wichert Sven P, Leutner Simon, Langermann Norbert, von Bergwelt-Baildon Michael, Heinemann Volker, Algül Hana, Zünkeler Martin, Nasseh Daniel
Comprehensive Cancer Center Munich, LMU University Hospital, LMU Munich, Munich, Germany.
KAIROS GmbH - an IQVIA business, Bochum, Germany.
Digit Health. 2024 Oct 9;10:20552076241272709. doi: 10.1177/20552076241272709. eCollection 2024 Jan-Dec.
The treatment of rare tumors often necessitates the involvement of highly specialized teams, typically based in larger medical centers or university hospitals, which are often lacking in rural areas. The German TARGET (the Trans-sectoral Personalized Care Concept for Patients with Rare Cancers) project aims to improve the network between outpatient oncology practices and more centralized expert teams via telemedicine.
The primary work involved conceptualizing the implementation of project requirements based on feedback from various TARGET project teams, and ultimately, the method of implementation using the software CentraXX. Key requirements included the utilization of an electronic health record (EHR), incorporating appropriate access mediums such as smartphones, and utilizing user-specific certificates to ensure secure and tailored access. The implementation considered technical aspects, data protection regulations, and the need for user-friendly interfaces, particularly for older patients with cancer with limited technological proficiency.
The results detail the successful implementation of the project requirements using CentraXX, which facilitated the implementation of an EHR, access mediums (patient app), and browser access for outpatient doctors, addressing the project's technical, security, and usability needs.
This article presents an overview of the requirements associated with the TARGET project and outlines how they were met in terms of the IT infrastructure. By focusing on the IT implementation rather than the medical trial results, this work aims to provide valuable insights and guidance for similar projects seeking to improve telemedicine networks and digital information exchange in the context of rare cancer treatment.
罕见肿瘤的治疗通常需要高度专业化的团队参与，这些团队一般设在大型医疗中心或大学医院，而农村地区往往缺乏此类资源。德国的TARGET（罕见癌症患者跨部门个性化护理概念）项目旨在通过远程医疗改善门诊肿瘤治疗机构与更集中的专家团队之间的网络。
主要工作包括根据各个TARGET项目团队的反馈，对项目要求的实施进行概念化设计，并最终确定使用CentraXX软件的实施方法。关键要求包括利用电子健康记录（EHR），纳入智能手机等合适的访问媒介，并使用用户特定证书以确保安全且量身定制的访问。实施过程考虑了技术方面、数据保护法规以及对用户友好界面的需求，特别是对于技术熟练程度有限的老年癌症患者。
结果详细说明了使用CentraXX成功实施项目要求的情况，这促进了EHR、访问媒介（患者应用程序）以及门诊医生的浏览器访问的实施，满足了项目的技术、安全和可用性需求。
本文概述了与TARGET项目相关的要求，并概述了如何在IT基础设施方面满足这些要求。通过关注IT实施而非医学试验结果，这项工作旨在为寻求在罕见癌症治疗背景下改善远程医疗网络和数字信息交换的类似项目提供有价值的见解和指导。
