Department of Health Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
Department of Physiotherapy and Occupational Therapy, United Bulawayo Hospitals, Bulawayo, Zimbabwe.
BMC Pediatr. 2024 Oct 14;24(1):659. doi: 10.1186/s12887-024-05119-w.
The role of, and impact on, mothers caring for children with neuro-developmental delay (NDD) is well documented. However, the role of fathers and siblings in families of children with NDD remains significantly understudied, particularly in low- and middle-income countries (LMICs). There has been an increased call for holistic rehabilitation of children with NDD at the family level. This study aimed to explore the involvement of fathers and siblings in the home rehabilitation programmes of children with NDD.
A scoping review was conducted using the Joanna Briggs Institute (JBI) Peters et al.'s methodology and reported according to Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guidelines. Articles were retrieved from PUBMED, ScienceDirect, PsycINFO, SCOPUS, PEDro, and Google Scholar. Reference lists of relevant studies were also manually searched.
Thirty research articles were identified. Father and sibling participation in home-based rehabilitation and caregiving is low in LMICs compared to high-income countries due to economic factors and cultural beliefs. Reduced participation stresses mothers and reduces developmental outcomes in children with NDD.
This review highlights the need for rehabilitation professionals to encourage father and sibling participation in caregiving for children with NDD in home rehabilitation programmes.
有大量文献记录了母亲在照顾患有神经发育迟缓（NDD）儿童方面的作用和影响。然而，父亲和兄弟姐妹在 NDD 儿童家庭中的作用仍然在很大程度上被研究忽视，尤其是在中低收入国家（LMICs）。人们越来越呼吁在家庭层面上对 NDD 儿童进行全面康复。本研究旨在探讨父亲和兄弟姐妹在 NDD 儿童家庭康复计划中的参与情况。
采用 Joanna Briggs 研究所（JBI）Peters 等人的方法进行范围综述，并根据系统评价和荟萃分析扩展的首选报告项目（PRISMA-ScR）指南进行报告。文章从 PUBMED、ScienceDirect、PsycINFO、SCOPUS、PEDro 和 Google Scholar 中检索。还手动搜索了相关研究的参考文献列表。
确定了 30 篇研究文章。由于经济因素和文化信仰，与高收入国家相比，父亲和兄弟姐妹参与基于家庭的康复和护理在 LMICs 中较低。参与度的降低给母亲带来了压力，并降低了 NDD 儿童的发育结果。
本综述强调了康复专业人员需要鼓励父亲和兄弟姐妹参与儿童在家庭康复计划中的护理。
