Molato Boitumelo Joy, Moloko-Phiri Salaminah, Koen Magdalena, Matsipane Molekodi
NuMIQ Research Focus Area, School of Nursing, Faculty of Health Sciences, North West University Mahikeng campus, Private Bag X2046, Mmabatho, Mafikeng, 2745, South Africa.
BMC Nurs. 2024 Oct 14;23(1):754. doi: 10.1186/s12912-024-02411-z.
The human immunodeficiency virus (HIV) and acquired immunodeficiency syndrome (AIDS) is an epidemic that continues to increase the burden of care among caregivers of HIV/AIDS orphans. Research has confirmed that HIV/AIDS orphans' caregivers perform their duties in an unconducive environment. Consequently, this negatively impacts their health leading to inability to discharge caregiving duties effectively. After carefully considering the caregivers' predicament, the researchers found it imperative to develop a conceptual framework for the North West Province as this province lacks a conceptual framework that addresses the health and well-being of caregivers for orphaned children.
An exploratory, descriptive and contextual design was used in the study. The population for this study were HIV/AIDS orphans' caregivers and ward-based professional nurses who also served as outreach team leaders. Non-probability purposive sampling technique was used to select participants for this study. Data was collected using individual semi-structured interviews, focus groups, and field notes. Six steps of thematic analysis were adopted to analyze collected data. The practice-orientated theory by Dickoff, James, and Wiedenbach guided the development of the conceptual framework. These six steps include the agent, recipient, context, procedure, dynamics, and terminus.
The study findings include home visits, health education, support during disclosure, routine monitoring of blood and growth, mobilization of support systems and resources, and utilization of government services.
The conceptual framework seeks to improve the health and well-being of HIV/AIDS orphans caregivers so that they may provide high-quality care to the orphans. The framework guides outreach team leaders and nurses registered in primary health care institutions on the procedure to follow to improve and preserve the health of caregivers of children orphaned by HIV/AIDS.
人类免疫缺陷病毒（HIV）和获得性免疫缺陷综合征（AIDS）是一种流行病，持续增加着HIV/AIDS孤儿照料者的护理负担。研究证实，HIV/AIDS孤儿的照料者在不利环境中履行职责。因此，这对他们的健康产生负面影响，导致无法有效履行照料职责。在仔细考虑照料者的困境后，研究人员发现有必要为西北省制定一个概念框架，因为该省缺乏一个解决孤儿照料者健康和福祉问题的概念框架。
本研究采用探索性、描述性和情境性设计。本研究的人群是HIV/AIDS孤儿的照料者以及担任外联团队负责人的病房专业护士。采用非概率目的抽样技术选择本研究的参与者。通过个人半结构化访谈、焦点小组和实地记录收集数据。采用主题分析的六个步骤来分析收集到的数据。迪科夫、詹姆斯和威登巴赫的实践导向理论指导了概念框架的制定。这六个步骤包括主体、接受者、情境、程序、动态和终点。
研究结果包括家访、健康教育、披露期间的支持、血液和生长的常规监测、支持系统和资源的动员以及政府服务的利用。
该概念框架旨在改善HIV/AIDS孤儿照料者的健康和福祉，以便他们能够为孤儿提供高质量的护理。该框架指导初级卫生保健机构中注册的外联团队负责人和护士遵循相关程序，以改善和维护因HIV/AIDS成为孤儿的儿童照料者的健康。
