Finucane Anne, Canny Anne, Mair Ally Pax Arcari, Harrop Emily, Selman Lucy E, Swash Brooke, Wakefield Donna, Gillanders David
Clinical Psychology, School of Health in Social Science, University of Edinburgh, Edinburgh, UK.
Marie Curie Hospice Edinburgh, Edinburgh, UK.
Palliat Med. 2025 Jan;39(1):31-52. doi: 10.1177/02692163241285101. Epub 2024 Oct 15.
Grieving is a natural process, and many people adjust with support from family and friends. Around 40% of people would benefit from additional input. Online bereavement support interventions may increase access to support. Evidence regarding their acceptability and effectiveness is emerging but needs to be synthesised.
To synthesise evidence on the feasibility, acceptability, effectiveness, impacts and implementation of online interventions to improve wellbeing, coping and quality of life after bereavement.
A rapid review of evidence regarding online bereavement support. We appraised study quality using AMSTAR 2 and the Mixed Methods Appraisal Tool.
English language articles published 1 January 2010 to 4 January 2024, using Ovid MEDLINE, Ovid Embase and APA PsycINFO. Eligible articles examined formal and informal online interventions to improve bereavement outcomes.
We screened 2050 articles by title and abstract. Four systematic reviews and 35 individual studies were included. Online bereavement support was feasible, acceptable and effective in reducing grief intensity, stress-related outcomes and depression. Where reported, participant retention was typically >70%. Positive impacts included: access to a supportive community at any time, reduced isolation; opportunities to process feelings; normalisation of loss responses; access to coping advice and opportunities for meaning-making and remembrance. Negative impacts included upset due to insensitive comments from others via unmoderated online forums.
Online interventions can widen access to acceptable, effective bereavement support and improve outcomes for bereaved people. National policies and clinical guidelines relating to bereavement support need to be updated to take account of online formats.
悲伤是一个自然的过程,许多人在家人和朋友的支持下能够调整过来。约40%的人会受益于额外的帮助。在线丧亲支持干预措施可能会增加获得支持的机会。关于其可接受性和有效性的证据正在出现,但需要进行综合分析。
综合关于在线干预措施在改善丧亲后幸福感、应对能力和生活质量方面的可行性、可接受性、有效性、影响和实施情况的证据。
对在线丧亲支持的证据进行快速综述。我们使用AMSTAR 2和混合方法评估工具对研究质量进行评估。
2010年1月1日至2024年1月4日发表的英文文章,使用Ovid MEDLINE、Ovid Embase和APA PsycINFO。符合条件的文章研究了正式和非正式的在线干预措施以改善丧亲结果。
我们通过标题和摘要筛选了2050篇文章。纳入了四项系统综述和35项个体研究。在线丧亲支持在降低悲伤强度、与压力相关的结果和抑郁方面是可行的、可接受的且有效的。据报告,参与者保留率通常>70%。积极影响包括:随时获得支持性社区,减少孤独感;有机会处理情绪;使丧失反应正常化;获得应对建议以及进行意义构建和纪念的机会。负面影响包括因在未加管理的在线论坛上他人的 insensitive 评论而感到不安。
在线干预措施可以扩大获得可接受的、有效的丧亲支持的机会,并改善丧亲者的结果。与丧亲支持相关的国家政策和临床指南需要更新以考虑在线形式。