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哮喘患儿家长对哮喘的认知和感知。

Knowledge and perception of asthma among parents of children with asthma.

机构信息

Child Medicine Department B, Béchir Hamza Children's Hospital in Tunis. Faculty of Medicine of Tunis, University Tunis el Manar, Tunis, Tunisia.

出版信息

Tunis Med. 2024 Oct 5;102(10):647-652. doi: 10.62438/tunismed.v102i10.4856.

Abstract

INTRODUCTION

Parents' knowledge is an integral part of healthcare quality, impacting treatment adherence, patient loyalty and healthcare utilisation in pediatric asthma. Parental knowledge is particularly crucial as parents influence decision-making for their child's healthcare.

AIM

To assess parents' knowledge and perceptions of their children's asthma and to identify areas for weakness in therapeutic education.

METHODS

This is transversal survey study based on validated and translated self-administered questionnaire (Arabic asthma knowledge questionnaire AAKQ). The study was conducted in 2 departments: pediatric primary care department at Elomrane and pediatric pneumology outpatient clinics at Bechir Hamza children's hospital of Tunis during 6 months (March2022- October2022).

RESULTS

One hundred forty-four parents were involved in the study. Most of the participants were mothers. The mean age was 38 years. Only 27,0% had higher education and smoking in parents was observed in 58% of cases. Our results showed moderate knowledge in 67,9% of participants. The mean of the total knowledge score was 57,7/85. Forty-six per cent of parents had poor knowledge for the first category of the questionnaire. The second category was the most successful part where only 14% had poor knowledge. The mean score of the third category was 13,5/20 with 35,4% of parents having poor knowledge. The mean of total knowledge was found to be higher among participants with higher education (P=0,000), when the gender of the child is masculine (P=0,038), when the parents were asked in Hospital of children of Tunis (P=0,003) and when there is a history of asthma in the siblings (P=0,05). No difference in caregiver's knowledge was based on their age or gender or history of asthma, on the age of the child, his hospitalization for asthma, his asthma control level or his compliance with medication.

CONCLUSION

Knowledge of parents and their children suffering from asthma is acceptable but insufficient. An approach focusing on improving patient education skills is needed to help families understand and accept the disease and achieve optimal control.

摘要

简介

父母的知识是医疗质量的一个组成部分,影响着治疗的依从性、患者的忠诚度和儿科哮喘的医疗利用。父母的知识尤为重要,因为父母会影响他们孩子的医疗决策。

目的

评估父母对子女哮喘的知识和认知,并确定治疗教育的薄弱环节。

方法

这是一项基于经过验证和翻译的自我管理问卷(阿拉伯语哮喘知识问卷 AAKQ)的横断面调查研究。该研究在 Elomrane 的儿科初级保健科和突尼斯贝奇尔·哈马兹儿童医院的儿科肺病门诊进行了 6 个月(2022 年 3 月至 2022 年 10 月)。

结果

共有 144 名家长参与了这项研究。大多数参与者是母亲。平均年龄为 38 岁。只有 27.0%的人受过高等教育,父母中有 58%吸烟。我们的结果显示,67.9%的参与者知识水平中等。总知识得分的平均值为 57.7/85。46%的家长对问卷的第一类知识较差。第二类是最成功的部分,只有 14%的家长知识较差。第三类的平均分数为 13.5/20,其中 35.4%的家长知识较差。受过高等教育的参与者总知识得分较高(P=0.000),当孩子的性别为男性(P=0.038),当父母在突尼斯儿童医院就诊(P=0.003)以及当兄弟姐妹有哮喘史(P=0.05)时。根据年龄、性别、哮喘史、孩子的年龄、因哮喘住院、哮喘控制水平或药物依从性,护理人员的知识没有差异。

结论

父母和患有哮喘的儿童的知识是可以接受的,但还不够。需要关注提高患者教育技能的方法,帮助家庭理解和接受疾病,实现最佳控制。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/891d/11574383/f53cecb217ae/capture1.jpg

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