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幼儿功能性便秘患儿家长直肠干预依从性的促进因素与障碍:一项定性研究

Facilitators and barriers of adherence to rectal interventions by parents of young children with functional constipation: a qualitative study.

作者信息

Shen Haiyan, Zhang Li, Zhang Yu, Huang Yan, Xu Banghong, Yu Mingming

机构信息

Department of Gastroenterology, Children's Hospital of Nanjing Medical University, Nanjing, China.

出版信息

Front Pediatr. 2024 Oct 9;12:1417389. doi: 10.3389/fped.2024.1417389. eCollection 2024.

DOI:10.3389/fped.2024.1417389
PMID:39444711
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11496162/
Abstract

BACKGROUND

Functional constipation in children is a worldwide problem that impacts both children's gastrointestinal function and the quality of family life. The treatment of this condition often depends on parental involvement to administer rectal interventions to their children to stimulate defecation. However, adherence to rectal interventions is currently suboptimal. We sought to explore the factors that facilitate and hinder parents from adherence to rectal interventions.

METHODS

A descriptive qualitative study was conducted involving semi-structured interviews with parents of infants and young children with functional constipation requiring rectal interventions from March to May 2023. The data were analyzed using content analysis.

RESULTS

Fourteen parents participated in the study. Parents reported the main facilitators of adherence to prescribed rectal interventions as recognition of illness severity, support from family and friends, and medical resource support and e-health literacy. Parents reported the primary barriers as information barriers, family conflict, cognitive misalignment, and difficulties in accessing healthcare services.

CONCLUSION

Rectal interventions are often essential in managing constipation in young children, with parental compliance being crucial for effective treatment. Healthcare providers must consider the psychosocial aspects of parents' perceptions, adhere to guidelines to standardize communication, and ensure comprehensive education to improve medication literacy.

摘要

背景

儿童功能性便秘是一个全球性问题,影响儿童的胃肠功能和家庭生活质量。这种疾病的治疗通常依赖父母参与对孩子进行直肠干预以刺激排便。然而,目前对直肠干预的依从性并不理想。我们试图探究促进和阻碍父母坚持直肠干预的因素。

方法

2023年3月至5月,对需要进行直肠干预的功能性便秘婴幼儿的父母进行了半结构式访谈,开展了一项描述性定性研究。采用内容分析法对数据进行分析。

结果

14名家长参与了该研究。家长们报告称,坚持规定的直肠干预的主要促进因素是对疾病严重程度的认识、家人和朋友的支持、医疗资源支持和电子健康素养。家长们报告的主要障碍是信息障碍、家庭冲突、认知偏差以及获得医疗服务的困难。

结论

直肠干预在幼儿便秘管理中通常至关重要,父母的依从性对有效治疗至关重要。医疗服务提供者必须考虑父母认知的社会心理方面,遵守指南以规范沟通,并确保进行全面教育以提高用药素养。

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本文引用的文献

1
Understanding Childhood Constipation through the Prism of the Caretaker.通过照顾者的视角理解儿童便秘。
J Indian Assoc Pediatr Surg. 2023 Sep-Oct;28(5):400-406. doi: 10.4103/jiaps.jiaps_103_23. Epub 2023 Sep 5.
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An Update of Pharmacological Management in Children with Functional Constipation.儿童功能性便秘的药物治疗进展。
Paediatr Drugs. 2023 May;25(3):343-358. doi: 10.1007/s40272-023-00563-0. Epub 2023 Mar 20.
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Childhood constipation: Current status, challenges, and future perspectives.儿童便秘:现状、挑战及未来展望
World J Clin Pediatr. 2022 Sep 9;11(5):385-404. doi: 10.5409/wjcp.v11.i5.385.
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Everyday life with childhood functional constipation: A qualitative phenomenological study of parents' experiences.儿童功能性便秘的日常生活:父母体验的定性现象学研究。
J Pediatr Nurs. 2022 Nov-Dec;67:e165-e171. doi: 10.1016/j.pedn.2022.07.021. Epub 2022 Aug 2.
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Childhood Obesity: An Updated Review.儿童肥胖症:最新综述。
Curr Pediatr Rev. 2024;20(1):2-26. doi: 10.2174/1573396318666220801093225.
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What is the Evidence for Over the Counter Laxatives to Treat Childhood Constipation?治疗儿童便秘的非处方缓泻药的证据是什么?
Curr Gastroenterol Rep. 2021 Oct 12;23(11):19. doi: 10.1007/s11894-021-00818-1.
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Association between childhood constipation and exposure to stressful life events: a systematic review.儿童便秘与暴露于应激性生活事件之间的关联:一项系统综述。
Neurogastroenterol Motil. 2022 Apr;34(4):e14231. doi: 10.1111/nmo.14231. Epub 2021 Aug 20.
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Understanding Parents' Experiences When Caring for a Child With Functional Constipation: Interpretive Description Study.了解父母照顾功能性便秘儿童的经历:诠释性描述研究
JMIR Pediatr Parent. 2021 Jan 20;4(1):e24851. doi: 10.2196/24851.
9
Behavioral and emotional problems in adolescents with constipation and their association with quality of life.青少年便秘的行为和情绪问题及其与生活质量的关系。
PLoS One. 2020 Oct 12;15(10):e0239092. doi: 10.1371/journal.pone.0239092. eCollection 2020.
10
Experiences of parents who give pharmacological treatment to children with functional constipation at home.父母在家中为患有功能性便秘的儿童进行药物治疗的体验。
J Adv Nurs. 2020 Dec;76(12):3519-3527. doi: 10.1111/jan.14539. Epub 2020 Oct 12.