《步态结局评估清单（GOAL）问卷》：土耳其脑瘫儿童中的重测信度和效度。
The Gait Outcomes Assessment List (GOAL) questionnaire: Test-retest reliability and validity in children with cerebral palsy in Türkiye.
机构信息
Karadeniz Technical University, Faculty of Health Sciences, Department of Physiotherapy and Rehabilitation, Trabzon, Turkey.
Division of Orthopaedic Surgery and Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
出版信息
Gait Posture. 2024 Oct;114:290-296. doi: 10.1016/j.gaitpost.2024.10.009. Epub 2024 Oct 23.
BACKGROUND
Most questionnaires provide little information about children's or parents' views on functioning and do not attempt to understand their priorities or expectations. The Gait Outcomes Assessment List (GOAL) questionnaire was developed to fill this gap by identifying the most important goals of the patient and family for a gait intervention.
RESEARCH QUESTION
To investigate the test-retest reliability and concurrent and discriminant validity of the GOAL questionnaire in children with cerebral palsy (CP) in Türkiye.
METHODS
In this study, we included 81 children with CP aged 5-18 years and their families. The parent and child version 5.0 of the GOAL was used. Standardized item, domain and total (across all domains) GOAL scores were calculated for each participant. Test-retest reliability was assessed with the intraclass correlation coefficient (ICC). The Gillette Functional Assessment Questionnaire (FAQ) was used for validation.
RESULTS
The mean age of the children was 10.4 ± 3.3 years (range 5-18), and 64.2 % were boys. The test-retest reliability was excellent for the GOAL-Child and GOAL-Parent total GOAL scores (ICC: 0.97 for the child and ICC: 0.96 for the parent). All standard errors of measurement (SEMs) for domain scores and total scores were fewer than 20 points. The children's total scores on the GOAL questionnaire showed a significant difference between the GMFCS levels (p <0.001). The parents' total scores on the GOAL questionnaires also showed a significant difference between the GMFCS levels (p <0.001). There were moderate positive correlations between the GOAL child and parent questionnaire total scores and the FAQ walking level according to Spearman's rho (GOAL child and FAQ walking rho: 0.66, p<0.001; GOAL parent and FAQ walking rho: 0.58, p<0.001).
SIGNIFICANCE
The results demonstrate that the child and parent versions of the GOAL 5.0 are valid and reliable for the comprehensive assessment of Turkish children with CP.
背景
大多数问卷对儿童或家长的功能状态提供的信息很少，也没有试图了解他们的优先事项或期望。步态结果评估清单（GOAL）问卷通过确定患者和家庭对步态干预的最重要目标来填补这一空白。
研究问题
在土耳其的脑瘫（CP）儿童中，调查 GOAL 问卷的重测信度、同时效度和判别效度。
方法
本研究纳入了 81 名年龄在 5-18 岁的 CP 儿童及其家庭。使用 GOAL 的家长和儿童 5.0 版本。为每个参与者计算了标准化的项目、域和总（所有域）GOAL 分数。采用组内相关系数（ICC）评估重测信度。使用吉尔伯特功能评估问卷（FAQ）进行验证。
结果
儿童的平均年龄为 10.4±3.3 岁（范围 5-18 岁），64.2%为男孩。GOAL-Child 和 GOAL-Parent 总 GOAL 评分的重测信度均为优秀（儿童 ICC：0.97，家长 ICC：0.96）。所有域得分和总分的测量标准误差（SEM）均少于 20 分。GOAL 问卷儿童总分在 GMFCS 水平之间存在显著差异（p<0.001）。GOAL 问卷家长总分在 GMFCS 水平之间也存在显著差异（p<0.001）。GOAL 儿童和家长问卷总分与 FAQ 步行水平之间存在中度正相关（GOAL 儿童和 FAQ 步行 rho：0.66，p<0.001；GOAL 家长和 FAQ 步行 rho：0.58，p<0.001）。
意义
结果表明，GOAL 5.0 的儿童和家长版本对土耳其 CP 儿童的综合评估具有有效性和可靠性。
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