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肺癌和黑色素瘤患者对远程护理方法的认知与期望:一项现象学研究

Perceptions and Expectations of Patients with Lung Cancer and Melanoma about the Telenursing Approach: A Phenomenological Study.

作者信息

De Leo Aurora, Dionisi Sara, Spano Alessandro, Iacorossi Laura, Liquori Gloria, Giannetta Noemi, Di Simone Emanuele, Presta Paola, Petrone Fabrizio, Di Muzio Marco, Panattoni Nicolò

机构信息

Department of Biomedicine and Prevention, University of Rome Tor Vergata, 00133 Rome, Italy.

Nursing Research Unit IFO, IRCCS Istituti Fisioterapici Ospitalieri, 00144 Rome, Italy.

出版信息

Nurs Rep. 2024 Sep 27;14(4):2680-2694. doi: 10.3390/nursrep14040198.

DOI:10.3390/nursrep14040198
PMID:39449435
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11503421/
Abstract

BACKGROUND

Telenursing could improve continuity of care in patients with cancer. This study aims to explore the expectations and perceptions of patients with lung cancer and melanoma toward telenursing.

METHODS

A descriptive qualitative study using a phenomenological approach was conducted on a convenience sampling of twenty patients aged 18 years or over from a Cancer Center. With the consent of patients and the relevant Ethics Committee, in-depth open-ended face-to-face interviews were conducted until data saturation. The phenomenon's essence was achieved through themes emerging from the qualitative data analysis.

RESULTS

Patients' perceptions and expectations were related to areas explored by a general theme on the nurse-patient relationship's importance. Four themes and eleven sub-themes were focused on misconceptions about lack of use, patients' potential and fears, the home as a place of care, and the caring relationship. Fifteen patients perceived the internet as a chaotic "bubble".

CONCLUSIONS

Despite the lack of previous use, patients consider telenursing positively as "a bridge between home and care", especially in the advanced stages of the disease. They highlighted strengths and weaknesses of telenursing, such as having "someone for you", connection, fear of psychological addiction, loss of privacy, and lack of empathy. This study was not registered.

摘要

背景

远程护理可改善癌症患者的护理连续性。本研究旨在探讨肺癌和黑色素瘤患者对远程护理的期望和看法。

方法

采用现象学方法进行描述性定性研究,对一家癌症中心20名18岁及以上的患者进行便利抽样。在患者和相关伦理委员会同意的情况下,进行深入的开放式面对面访谈,直至数据饱和。通过定性数据分析中出现的主题来把握该现象的本质。

结果

患者的看法和期望与一个关于护患关系重要性的总体主题所探讨的领域相关。四个主题和十一个子主题聚焦于对未使用的误解、患者的潜力和恐惧、家作为护理场所、以及护理关系。十五名患者将互联网视为一个混乱的“泡沫”。

结论

尽管此前未使用过,但患者积极地将远程护理视为“家庭与护理之间的桥梁”,尤其是在疾病晚期。他们强调了远程护理的优点和缺点,例如“有人为你服务”、联系、对心理成瘾的恐惧、隐私丧失和缺乏同理心。本研究未注册。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e915/11503421/29264d307da6/nursrep-14-00198-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e915/11503421/29264d307da6/nursrep-14-00198-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e915/11503421/29264d307da6/nursrep-14-00198-g001.jpg

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Semin Oncol Nurs. 2024 Oct;40(5):151692. doi: 10.1016/j.soncn.2024.151692. Epub 2024 Jul 19.
2
Mapping trends and hotspots regarding the use of telenursing for elderly individuals with chronic diseases: A bibliometric analysis.基于文献计量学的老龄化慢性病患者远程护理使用趋势及热点分析。
Medicine (Baltimore). 2024 Mar 1;103(9):e37313. doi: 10.1097/MD.0000000000037313.
3
Use of tele-nursing in primary care: A qualitative study on its negative and positive aspects.
远程护理在初级保健中的应用:对其负面和正面方面的定性研究。
Aten Primaria. 2024 May;56(5):102843. doi: 10.1016/j.aprim.2023.102843. Epub 2024 Jan 12.
4
Telenursing Interventions for Patients With Cancer Receiving Chemotherapy: A Scoping Review.远程护理干预在癌症化疗患者中的应用:一项范围综述。
Oncol Nurs Forum. 2023 Oct 19;50(6):767-782. doi: 10.1188/23.ONF.767-782.
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Types and Effects of Telenursing in Home Health Care: A Systematic Review and Meta-Analysis.远程护理在家庭医疗保健中的类型和效果:系统评价和荟萃分析。
Telemed J E Health. 2024 Sep;30(9):2431-2444. doi: 10.1089/tmj.2023.0188. Epub 2023 Sep 14.
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