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养育患有注意力缺陷多动障碍的孩子:约旦人的观点。

Parenting a child with attention deficit hyperactivity disorder: Jordanian's perspectives.

作者信息

Harb Eman M, Obieat Hanan D Al, Hamdan-Mansour Ayman M

机构信息

Princess Salama Faculty of Nursing, Al al-Bayt University, Mafraq, Jordan.

Al-Zaytoonah University of Jordan, School of Nursing, Jordan.

出版信息

Clin Child Psychol Psychiatry. 2025 Jan;30(1):20-31. doi: 10.1177/13591045241292011. Epub 2024 Oct 29.

DOI:10.1177/13591045241292011
PMID:39470117
Abstract

Raising your child with attention deficit hyperactivity disorder (ADHD) in Jordan is a challenge due to the prevailing behavioral concerns, low availability of specialized care, and generalized feelings of social stigma. This phenomenological study involved twelve Jordanian parents of children aged 4-14 years, all diagnosed with ADHD according to DSM-IV-TR criteria. Participants were recruited through purposive sampling, and semi-structured interviews were conducted. Thematic analysis revealed three key themes: "The Journey through ADHD," in which parents recognized the abnormalities of their children, reported suffering during the diagnosis, and described a wide range of uncertainty regarding the diagnosis and treatments. The second theme was "Disease as part of life," where parents reported the impact on family dynamics and social life. The third theme was "Caregiving burden," reflecting physical and emotional exhaustion and financial burden. Jordanian parents caring for children with ADHD face several challenges, including physical, emotional, economic, and social challenges and limited access to specialized services. Identifying their unique needs and challenges is essential in supporting them, providing appropriate services and resources, and developing policies and guidelines for culturally competent quality services.

摘要

在约旦,养育患有注意力缺陷多动障碍(ADHD)的孩子是一项挑战,这是由于普遍存在的行为问题、专业护理服务的匮乏以及社会普遍存在的耻辱感。这项现象学研究涉及12位约旦家长,他们的孩子年龄在4至14岁之间,均根据《精神疾病诊断与统计手册》第四版修订版(DSM-IV-TR)标准被诊断为患有ADHD。通过目的抽样招募参与者,并进行了半结构化访谈。主题分析揭示了三个关键主题:“ADHD之旅”,在这个主题中,家长们认识到孩子的异常情况,讲述了诊断过程中的痛苦,并描述了在诊断和治疗方面存在的诸多不确定性。第二个主题是“疾病成为生活的一部分”,家长们报告了这对家庭动态和社会生活的影响。第三个主题是“照顾负担”,反映了身体和情感上的疲惫以及经济负担。照顾患有ADHD孩子的约旦家长面临着诸多挑战,包括身体、情感、经济和社会方面的挑战,以及获得专业服务的机会有限。了解他们独特的需求和挑战对于支持他们、提供适当的服务和资源以及制定具有文化胜任力的优质服务政策和指导方针至关重要。

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