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IBD 全年龄段照护提供模式框架。

Framework of IBD Care Delivery Across Ages.

机构信息

Department of Gastroenterology, Ziekenhuis Oost Limburg [ZOL] Maas en Kempen, Maaseik, Belgium.

Department of Clinical Science and Education, Karolinska Institutet, Södersjukhuset, Stockholm, Sweden.

出版信息

J Crohns Colitis. 2024 Oct 30;18(Supplement_2):ii55-ii66. doi: 10.1093/ecco-jcc/jjae093.

DOI:10.1093/ecco-jcc/jjae093
PMID:39475083
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11523023/
Abstract

IBD care has gone through a real transformation over the last century, moving from the mere unidirectional interaction between the physician and the patient to a stronger framework with multiple stakeholders who interconnect and strengthen each other. The patient has evolved from a passive subject to the central pole in the care pathway. Key elements of the future framework include patient self-care and empowerment, and remote monitoring [eHealth]. This care will be delivered by a multidisciplinary team acknowledging the pivotal role of the IBD nurse, and emphasising and measuring the quality of its work. The big challenge for the future is to establish a financially viable model to make this evolution durable in the long term, and this by using the principles of value-based health care.

摘要

IBD 护理在上个世纪经历了真正的变革,从医生和患者之间的单向互动转变为一个更强有力的框架,其中有多个利益相关者相互关联并相互加强。患者已从被动主体转变为护理途径的中心。未来框架的关键要素包括患者自我护理和赋权,以及远程监测 [电子健康]。这种护理将由多学科团队提供,承认 IBD 护士的关键作用,并强调和衡量其工作质量。未来的巨大挑战是建立一个财务可行的模式,以使这种演变在长期内具有可持续性,这是通过使用基于价值的医疗保健原则来实现的。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/9aa792e32a69/jjae093_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/1e261b05bc8e/jjae093_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/bcc5e2970e90/jjae093_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/8499da98d668/jjae093_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/9aa792e32a69/jjae093_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/1e261b05bc8e/jjae093_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/bcc5e2970e90/jjae093_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/8499da98d668/jjae093_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eedd/11523023/9aa792e32a69/jjae093_fig3.jpg

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引用本文的文献

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J Crohns Colitis. 2024 Oct 30;18(Supplement_2):ii1-ii2. doi: 10.1093/ecco-jcc/jjae118.

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Inequalities in Healthcare Access, Experience and Outcomes in Adults With Inflammatory Bowel Disease: A Scoping Review.炎症性肠病成年患者在医疗服务可及性、就医体验和治疗结果方面的不平等:一项范围综述
Inflamm Bowel Dis. 2024 Dec 5;30(12):2486-2499. doi: 10.1093/ibd/izae077.
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Clinical Pharmacist Counselling Improves Long-term Medication Safety and Patient-reported Outcomes in Anti-TNF-treated Patients With Inflammatory Bowel Diseases: The Prospective, Randomized AdPhaNCED Trial.临床药师咨询可改善接受抗 TNF 治疗的炎症性肠病患者的长期用药安全性和患者报告结局:前瞻性、随机 AdPhaNCED 试验
Inflamm Bowel Dis. 2025 Jan 6;31(1):77-86. doi: 10.1093/ibd/izae040.
3
Quality outcome measures project in IBD: a proof-of-concept benchmarking study in three Belgian IBD units.
炎症性肠病质量结果测量项目:三个比利时炎症性肠病单位的概念验证基准研究。
Acta Gastroenterol Belg. 2023 Oct-Dec;86(4):521-526. doi: 10.51821/86.4.11830.
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A Real-World Prospective Cohort Study of Patients With Newly Diagnosed Crohn's Disease Treated by a Multidisciplinary Team: 1-Year Outcomes.一项多学科团队治疗新诊断克罗恩病患者的真实世界前瞻性队列研究:1年结局
Crohns Colitis 360. 2023 Oct 18;5(4):otad064. doi: 10.1093/crocol/otad064. eCollection 2023 Oct.
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A quality assessment of inflammatory bowel disease nursing care in Finland: a nationwide cross-sectional descriptive study.芬兰炎症性肠病护理质量评估:一项全国性横断面描述性研究。
Scand J Gastroenterol. 2024 Jan-Jun;59(2):164-168. doi: 10.1080/00365521.2023.2276654. Epub 2024 Jan 30.
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Multidisciplinary Inflammatory Bowel Disease Conference: The Impact of the Expert Pathologist on Patient Care.多学科炎症性肠病大会:专家病理学家对患者护理的影响。
Inflamm Bowel Dis. 2024 Sep 3;30(9):1482-1491. doi: 10.1093/ibd/izad192.
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A Systematic Review of Self-Management Interventions for Patients with Inflammatory Bowel Disease.炎症性肠病患者自我管理干预措施的系统评价
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Dig Liver Dis. 2023 Sep;55(9):1214-1220. doi: 10.1016/j.dld.2023.04.010. Epub 2023 Apr 24.