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提高农村和偏远地区透析内循环的可及性:项目报告。

Increasing Accessibility to Intradialytic Cycling in Rural and Remote Settings: Program Report.

作者信息

Erian Sherry, Davies Rachelle, Morrison Kylie, West Christina, Ruiz Maria, Zubik Iwona, Nhan Julie, Thompson Stephanie

机构信息

Undergraduate Medicine, Royal College of Surgeons in Ireland, Dublin, Ireland.

University of Alberta, Edmonton, Canada.

出版信息

Can J Kidney Health Dis. 2024 Oct 21;11:20543581241287591. doi: 10.1177/20543581241287591. eCollection 2024.

Abstract

PURPOSE OF PROGRAM

Access to exercise and rehabilitation is often lower in rural or remote areas and hemodialysis (HD) dependence imposes additional barriers. Intradialytic cycling (IDC) can improve HD-related symptoms, such as leg cramping, restless legs, and symptoms of depression, as well as physical function and fitness, but access to exercise professionals with this expertise is limited. To promote access to IDC in rural and remote HD units, we describe the implementation and initial evaluation of a novel IDC program using virtual assessment to safely prescribe and individualize IDC.

SOURCES OF INFORMATION

We developed and piloted a protocol for virtual IDC assessment and prospectively collected metrics informed by the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework to support future quality improvement activities.

METHODS

Rural HD units were defined as per Alberta Kidney Care North (AKC-N)'s operations. The virtual IDC program components were: HD unit education sessions, support and interest from local unit staff and those receiving HD, a bike, a supervising kinesiologist, a stable Internet connection, a nurse present during the 25-minute initial virtual assessment, and virtual follow-up every 3 to 4 weeks with the kinesiologist. The initial assessment consists of a virtual bike test where the participant performs a graded, symptom-limited cycling trial with documentation of vital signs and rating of self-perceived exertion (relative intensity). The data are used to prescribe IDC (frequency, intensity, time). The HD unit staff learn participant and bike set-up, confirm safe exercise parameters for that day, adjust the bike intensity, and take vital signs. Outcomes for evaluating the impact of the IDC program using the RE-AIM health framework were selected.

KEY FINDINGS

Out of the 24 HD units in AKC-N, 18 units were defined as either remote or rural (75%). Four of the units (22%) adopted the program, which was less than our target of 30% of units. Individual-level participation (Reach) within those units ranged widely (1-67%) with only one unit reaching the target of at least 30% individual-level participation. Reasons for starting IDC were intradialytic cramping, restless legs, deconditioning, and boredom during HD. Reasons for non-participation were lack of interest and a desire to sleep. Routine exercise program questionnaires on health-related quality of life for program effectiveness were not consistently completed by participants. All virtual assessments were completed as per protocol with a nurse (100% fidelity); however, tests often needed to be re-scheduled due to technical issues with Wi-Fi, limited unit staffing, operational demands, and/or safety concerns. At 1 year, all 4 units continued to participate with 2 additional HD units starting the following year.

LIMITATIONS

Reach could be improved by introducing intradialytic exercise to individuals at HD initiation, prior to moving to their local satellite HD unit. Existing measures of program effectiveness may not be relevant to program participants or feasible to implement without an on-site exercise professional. Technical issues and navigating the busy schedules of unit staff were limitations to completing tests as scheduled.

IMPLICATIONS

Implementing a protocolized approach with virtual support can increase accessibility to an evidence-based treatment in HD units without exercise professionals. For people requiring HD, reach may be improved with early education and exposure at HD start and with orientation sessions for staff. Adding a virtual IDC assessment day for staff as part of their routine monthly task schedule may promote institutionalization. Formalized follow-up sessions for kinesiologists and nurses to discuss program concerns would benefit the program in the future. Completion of program effectiveness measures may be improved by selecting more individualized options, for example, person-reported measures related to the individual's reason for referral.

摘要

项目目的

在农村或偏远地区,人们获得锻炼和康复服务的机会往往较少,而依赖血液透析(HD)又带来了额外的障碍。透析期间骑行(IDC)可以改善与HD相关的症状,如腿部抽筋、不宁腿和抑郁症状,以及身体功能和健康状况,但具备这种专业知识的运动专业人员数量有限。为了促进农村和偏远HD单位开展IDC,我们描述了一个新颖的IDC项目的实施情况和初步评估,该项目使用虚拟评估来安全地制定和个性化IDC方案。

信息来源

我们制定并试行一项虚拟IDC评估方案,并根据“覆盖、效果、采用、实施和维持”(RE-AIM)框架前瞻性地收集指标,以支持未来的质量改进活动。

方法

根据艾伯塔省北部肾脏护理中心(AKC-N)的运营情况定义农村HD单位。虚拟IDC项目组成部分包括:HD单位教育课程、当地单位工作人员和接受HD治疗者的支持与兴趣、一辆自行车、一名监督运动生理学家、稳定的互联网连接、在25分钟初始虚拟评估期间在场的一名护士,以及运动生理学家每3至4周进行一次的虚拟随访。初始评估包括一次虚拟自行车测试,参与者在测试中进行分级、症状受限的骑行试验,记录生命体征并对自我感知运动强度(相对强度)进行评分。这些数据用于制定IDC方案(频率、强度、时间)。HD单位工作人员了解参与者和自行车的设置,确认当天的安全运动参数,调整自行车强度并测量生命体征。我们选择了使用RE-AIM健康框架评估IDC项目影响的结果指标。

主要发现

在AKC-N的24个HD单位中,18个单位被定义为偏远或农村单位(75%)。其中4个单位(22%)采用了该项目,低于我们设定的30%单位的目标。这些单位内的个人层面参与率(覆盖范围)差异很大(1%-67%),只有一个单位达到了至少30%个人层面参与率的目标。开始IDC的原因包括透析期间抽筋、不宁腿、身体机能下降以及HD期间无聊。不参与的原因是缺乏兴趣和想睡觉。参与者并未始终如一地完成关于项目有效性的常规运动项目健康相关生活质量问卷。所有虚拟评估均按照方案由一名护士完成(保真度100%);然而,由于Wi-Fi技术问题、单位人员配备有限、运营需求和/或安全问题,测试经常需要重新安排时间。在1年时,所有4个单位继续参与,次年又有2个HD单位开始参与。

局限性

在患者转至当地卫星HD单位之前,在HD开始时就向患者介绍透析期间运动,可能会提高覆盖范围。现有的项目有效性衡量指标可能与项目参与者无关,或者在没有现场运动专业人员的情况下难以实施。技术问题以及协调单位工作人员繁忙的日程安排是按计划完成测试的限制因素。

启示

采用虚拟支持的标准化方法可以增加在没有运动专业人员的HD单位获得循证治疗的机会。对于需要HD的人,在HD开始时进行早期教育和接触,并为工作人员举办培训课程,可能会提高覆盖范围。将虚拟IDC评估日作为工作人员常规月度任务安排的一部分,可能会促进项目制度化。为运动生理学家和护士安排正式的随访会议以讨论项目相关问题,将对未来的项目有益。通过选择更个性化的选项,例如与个人转诊原因相关的个人报告指标,可能会提高项目有效性措施的完成率。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2c64/11526228/b4f72323d4a4/10.1177_20543581241287591-fig1.jpg

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