Queen's University of Belfast, UK.
Queen's University of Belfast, UK; Belfast Health and Social Care Trust, UK.
Epilepsy Res. 2024 Dec;208:107459. doi: 10.1016/j.eplepsyres.2024.107459. Epub 2024 Oct 18.
Adherence to anti-seizure medication (ASM) by people diagnosed with epilepsy in sub-Saharan Africa remains low. The factors for low adherence are not well understood. To improve adherence, it is important to understand the perceptions and views of healthcare professionals delivering epilepsy care to this population. The aim was to investigate the factors influencing ASM adherence.
This study uses a brief online questionnaire which asked healthcare professionals (both from nursing and medical backgrounds) who work in sub-Saharan African countries to rate a set of pre-established options designed with the feedback of a local focus group of epilepsy experts from countries targeted. The questionnaire consisted of six questions and was a mix of multiple choice and Likert scale questions.
There were 217 healthcare professionals who replied to the questionnaire. The most important factors believed to be influencing adherence from a healthcare professional perspective are; lack of availability of medication for epilepsy (71 %), affordability of medication (60 %), the patient, family, carer lacking in understanding of medication (43 %), cultural misconceptions about epilepsy (40 %) and side effects of the medication (32 %). The survey was answered by many different healthcare professionals; 65 participants were doctors and 152 were other healthcare professionals such as nurses (59 %) pharmacists (10 %) and when comparing them, the three most important categories were consistent across groups.
Healthcare workers in Sub-Saharan Africa identify that the primary factors impacting adherence to ASMs, in their view, is affordability and availability of ASMs.Addressing this issue may reduce the treatment gap.
在撒哈拉以南非洲地区被诊断患有癫痫的人群中,他们对抗癫痫药物(ASM)的依从性仍然较低。依从性低的原因尚不清楚。为了提高依从性,了解为该人群提供癫痫护理的医疗保健专业人员的看法和观点很重要。目的是调查影响 ASM 依从性的因素。
本研究使用简短的在线问卷,要求在撒哈拉以南非洲国家工作的医疗保健专业人员(包括护理和医学背景)对一组预先确定的选项进行评分,这些选项是根据目标国家的当地癫痫专家焦点小组的反馈设计的。问卷由六个问题组成,包括多项选择和李克特量表问题。
有 217 名医疗保健专业人员回答了问卷。从医疗保健专业人员的角度来看,被认为最能影响依从性的因素是;缺乏癫痫药物(71%)、药物负担能力(60%)、患者、家属、照顾者对药物缺乏了解(43%)、对癫痫的文化误解(40%)和药物副作用(32%)。该调查由许多不同的医疗保健专业人员回答;65 名参与者是医生,152 名是其他医疗保健专业人员,如护士(59%)、药剂师(10%),将他们进行比较,三个最重要的类别在不同组中是一致的。
撒哈拉以南非洲的医疗保健工作者认为,影响 ASM 依从性的主要因素是 ASM 的可负担性和可获得性。解决这个问题可能会缩小治疗差距。