Biset Natacha, Rosière Amélie, Lartigue Victoria, Pochet Stéphanie, De Vriese Carine
Department of Pharmacotherapy and Pharmaceutics, Faculté de Pharmacie, Université libre de Bruxelles (ULB), Brussels, Belgium.
Digit Health. 2024 Nov 3;10:20552076241288317. doi: 10.1177/20552076241288317. eCollection 2024 Jan-Dec.
Chronic obstructive pulmonary disease (COPD) patients often have poor health literacy, leading to non-adherence to treatment and poor inhalation technique. Technological solutions can help manage COPD, but adherence tends to be low due to various factors.
We conducted a qualitative study to determine the needs of COPD patients and healthcare practitioners (HCPs) towards a mobile application and a web platform. We also aimed to identify potential barriers or facilitators to the use of such digital tools and their potential impact, and to assess the current state of collaboration between healthcare practitioners.
Our study found that COPD patients face difficulties in managing the disease and treatments, lack information and need easier contact with caregivers. Patients' needs include access to reliable information about COPD, its medical treatments and smoking cessation, help in maintaining good physical condition through adapted exercises, incentives and reminders, and crisis management protocols or a logbook. As patient needs can differ, it would be ideal if the mobile application could be customized. HCPs cite patient adherence, correct intake of the treatment, communication and lack of patient motivation as challenges. In particular, they would like to have access to information on patient follow-up and logbooks, as well as scientific documentation. They believe that interprofessional collaboration is essential for good patient care. However, lack of time is a major hurdle in optimizing this collaboration.
Our study showed that most patients and HCPs view a technological platform positively to support the care of COPD patients and promote interprofessional collaboration.
慢性阻塞性肺疾病（COPD）患者的健康素养往往较差，导致治疗依从性不佳和吸入技术欠佳。技术解决方案有助于管理慢性阻塞性肺疾病，但由于各种因素，依从性往往较低。
我们进行了一项定性研究，以确定慢性阻塞性肺疾病患者和医疗保健从业者（HCP）对移动应用程序和网络平台的需求。我们还旨在确定使用此类数字工具的潜在障碍或促进因素及其潜在影响，并评估医疗保健从业者之间的当前合作状态。
我们的研究发现，慢性阻塞性肺疾病患者在疾病和治疗管理方面面临困难，缺乏信息，需要更方便地与护理人员联系。患者的需求包括获取有关慢性阻塞性肺疾病、其医学治疗和戒烟的可靠信息，通过适当的锻炼、激励和提醒来帮助维持良好的身体状况，以及危机管理方案或日志。由于患者需求可能不同，如果移动应用程序可以定制将是理想的。医疗保健从业者将患者依从性、正确的治疗摄入量、沟通和患者缺乏动力视为挑战。特别是，他们希望能够获取有关患者随访和日志的信息以及科学文献。他们认为跨专业合作对于良好的患者护理至关重要。然而，时间不足是优化这种合作的主要障碍。
我们的研究表明，大多数患者和医疗保健从业者对技术平台持积极态度，以支持慢性阻塞性肺疾病患者的护理并促进跨专业合作。
