de Vos-Houben Joyce M J, Bruls Femke, Heiyerjans Christel, Roijen Rianne, Völlink Trijntje, Bakker Esther C
Maastricht UMC+ Comprehensive Cancer Center, Maastricht, the Netherlands.
Department of Psychology, Open University, Heerlen, the Netherlands.
PEC Innov. 2024 Oct 18;5:100351. doi: 10.1016/j.pecinn.2024.100351. eCollection 2024 Dec 15.
Discussing cancer with children presents challenges. Evidence underscores the importance of transparent communication in aiding children's coping mechanisms amidst a parent's diagnosis. 'The telling box' intervention was developed to assist mothers in discussing cancer with their children. This study aimed to explore nurses' and mothers' perspectives on the 'telling box'.
Semi-structured interviews were conducted with six oncology nurses and five mothers diagnosed with breast cancer to assess their experiences and opinions regarding 'the telling box'.
Both nurses and mothers emphasize the significance of open communication with children. Nurses identified 'the telling box' as a valuable resource for starting discussions about cancer with children, but lack of time and knowledge were factors preventing them from distributing the boxes. The current design of the box did not meet the mothers' needs, and the timing of its distribution was suboptimal. We recommend education of nurses on the use of 'the telling box' and customizing its content based on the child's age and treatment stage of the mother.
This study offers important insights from both patients and healthcare professionals. 'The telling box' was developed through collaborative efforts involving healthcare professionals and patients.
与儿童谈论癌症存在挑战。有证据强调，在父母被诊断出癌症的情况下，透明沟通对帮助儿童应对机制的重要性。“告知盒”干预措施旨在帮助母亲与孩子谈论癌症。本研究旨在探讨护士和母亲对“告知盒”的看法。
对六名肿瘤护士和五名被诊断患有乳腺癌的母亲进行了半结构化访谈，以评估她们对“告知盒”的体验和看法。
护士和母亲都强调与孩子进行开放沟通的重要性。护士们认为“告知盒”是与孩子开始谈论癌症的宝贵资源，但时间和知识的缺乏是阻碍她们分发这些盒子的因素。目前盒子的设计不符合母亲们的需求，其分发时间也不尽人意。我们建议对护士进行关于“告知盒”使用的培训，并根据孩子的年龄和母亲的治疗阶段对其内容进行定制。
本研究提供了患者和医疗保健专业人员的重要见解。“告知盒”是通过医疗保健专业人员和患者的共同努力开发的。
