Universidade Federal da Paraíba, Centro de Ciências da Saúde, João Pessoa, Paraíba, Brasil.
Universidade Federal do Rio Grande do Norte, Escola de Saúde, Natal, Rio Grande do Norte, Brasil.
Rev Gaucha Enferm. 2024 Nov 4;45:e20230189. doi: 10.1590/1983-1447.2024.20230189.en. eCollection 2024.
To apprehend the family's perception of the care provided by home care services to children and adolescents with special health needs.
Qualitative, exploratory-descriptive study, carried out with 15 family members of children and adolescents with special health needs served by Home Care Services in seven municipalities in Paraíba, in 2021, selected from nine municipalities identified by previous studies. Data were collected using semi-structured interviews carried out remotely through telephone calls. The empirical material was subjected to Inductive Thematic Analysis and interpreted in light of the concept of health vulnerability.
The Home Care Services facilitate minimize the health vulnerabilities of these children and adolescents and their families as they facilitate access to the actions and services of the Health Care Network, provide humanized care focused on promoting health and strengthening bonds, as well as how, they facilitate family decision-making at home regarding users' health needs.
The actions of these services permeate family daily life, enabling the expansion of care practices for family members/caregivers considering their limitations and improving the coordination of Health Care Networks to guarantee comprehensive care.
了解家庭对儿童和青少年特殊健康需求的家庭护理服务的看法。
这是一项定性、探索性描述研究，于 2021 年在帕拉伊巴的七个城市中进行，研究对象为接受家庭护理服务的儿童和青少年的 15 名家庭成员。这些家庭是从之前研究中确定的 9 个城市中挑选出来的。数据通过远程电话访谈的方式收集，并使用归纳主题分析进行处理，同时根据健康脆弱性的概念进行解释。
家庭护理服务有助于最大限度地减少这些儿童和青少年及其家庭的健康脆弱性，因为它们促进了对医疗保健网络的行动和服务的获取，提供了注重促进健康和加强联系的人性化护理，同时，还能帮助家庭在用户的健康需求方面做出决策。
这些服务的行动渗透到家庭日常生活中，使家庭成员/照顾者的护理实践得以扩展，同时考虑到他们的局限性，并改善医疗保健网络的协调，以保证全面的护理。
