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可读性的重要性:通过多语言在线资源了解斑秃

The Importance of Readability: A Guide to Understanding Alopecia Areata through Multilingual Online Resources.

机构信息

University Hospital in Wroclaw, Wroclaw, Poland.

Faculty of Dentistry, Wroclaw Medical University, Wroclaw, Poland.

出版信息

Acta Derm Venereol. 2024 Nov 7;104:adv41046. doi: 10.2340/actadv.v104.41046.

Abstract

Online resources play a vital role in patient education, yet the readability of alopecia areata-related materials remained understudied. A thorough analysis of online alopecia areata-related materials across 5 languages was conducted using Google search. Search terms "alopecia areata" and "alopecia areata treatment" were translated and queried, generating search result lists. The first 50 articles from each list were evaluated for suitability. The materials were categorized into 2 main groups: those focusing on alopecia areata itself and those addressing its treatment. Treatment materials were further divided into subgroups, including Janus kinase inhibitors and other treatment options. Readability was evaluated using the Lix score. The analysis included 251 articles in English, German, French, Italian, and Spanish. The overall mean Lix score was 52 ± 8, which classified them as very hard to comprehend. Articles on alopecia areata treatment had a mean Lix score of 55 ± 8, which was significantly higher (p < 0.001) than those on alopecia areata itself, 50 ± 8. alopecia areata-treatment articles dedicated to JAK inhibitors had an average Lix score of 57 ± 10 and it was significantly higher (p = 0.043) than those on other treatment, 53 ± 6. Online resources on alopecia areata and its treatments remained challenging to comprehend, particularly regarding JAK inhibitors. Improving clarity in patient education materials is crucial for informed decision-making and therapeutic relationships.

摘要

在线资源在患者教育中起着至关重要的作用,但有关斑秃的资料可读性仍研究不足。本研究使用谷歌搜索对 5 种语言的在线斑秃相关资料进行了全面分析。翻译并查询了“斑秃”和“斑秃治疗”的搜索词,生成搜索结果列表。从每个列表中评估前 50 篇文章的适用性。将这些材料分为 2 个主要组:一组侧重于斑秃本身,另一组则针对其治疗方法。治疗材料进一步分为亚组,包括 JAK 抑制剂和其他治疗选择。使用 Lix 评分评估可读性。分析共纳入 251 篇英文、德文、法文、意大利文和西班牙文文章。总体平均 Lix 得分为 52±8,表明这些材料极难理解。关于斑秃治疗的文章平均 Lix 得分为 55±8,明显高于(p<0.001)关于斑秃本身的文章(50±8)。专门针对 JAK 抑制剂的斑秃治疗文章平均 Lix 得分为 57±10,显著高于(p=0.043)其他治疗方法(53±6)的文章。有关斑秃及其治疗的在线资源仍然难以理解,尤其是关于 JAK 抑制剂的信息。改善患者教育材料的清晰度对于知情决策和治疗关系至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cee1/11559260/97cd806df445/ActaDV-104-41046-g001.jpg

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