Girolamo Teresa, Escobedo Alicia, Ghali Samantha, Greene-Pendelton Kyle, Campos Iván, Ram-Kiran Poornima
School of Speech, Language, and Hearing Sciences, San Diego State University, San Diego, California.
Department of English, California State University San Bernardino, San Bernardino, California.
Semin Speech Lang. 2024 Nov;45(5):500-523. doi: 10.1055/s-0044-1793913. Epub 2024 Nov 14.
Racially and ethnically minoritized (minoritized) autistic individuals face intersectional disparities in service access in the transition to adulthood. Our understanding of disparities is limited by systematic exclusion from research and inadequate approaches to characterizing services. To address these gaps and effect advocacy, this study (1) examined services received, unmet service needs, and barriers in minoritized autistic adolescents and adults and (2) determined if language, NVIQ, and autism traits predict services when deployed as binary or continuous variables. Academic and community partners tailored community-based participatory research (CBPR) to a local context. Participants ( = 73, ages 13-30) completed a behavioral assessment protocol. Participants and caregivers provided information on services received, unmet service needs, and barriers to services. Data were analyzed using descriptive and regression. Participants received multiple services yet had multiple unmet service needs and barriers. Effects of services differed by approach. Language impairment, but not language scores, predicted receiving more services. High levels of autism traits and autism trait scores predicted more unmet service needs. While the number of services and unmet service needs was similar to prior work, differences in individual service variables and effects support attention to heterogeneity. Findings support intersectional approaches to CBPR and autism research.
在向成年期过渡的过程中,在种族和族裔上处于少数群体地位(受边缘化)的自闭症患者在获得服务方面面临交叉性差异。我们对这些差异的理解受到研究系统性排斥以及描述服务的方法不足的限制。为了填补这些空白并推动宣传工作,本研究(1)调查了受边缘化的自闭症青少年和成年人所接受的服务、未满足的服务需求以及障碍,(2)确定当语言、非言语智商(NVIQ)和自闭症特征作为二元或连续变量时是否能预测服务情况。学术和社区合作伙伴根据当地情况对基于社区的参与性研究(CBPR)进行了调整。参与者(n = 73,年龄在13 - 30岁之间)完成了一项行为评估方案。参与者和照顾者提供了有关所接受服务、未满足的服务需求以及服务障碍的信息。使用描述性和回归分析对数据进行了分析。参与者接受了多种服务,但仍有多项未满足的服务需求和障碍。服务效果因方法而异。语言障碍而非语言分数预测了接受更多服务的情况。高水平的自闭症特征和自闭症特征分数预测了更多未满足的服务需求。虽然服务数量和未满足的服务需求与先前的研究相似,但个体服务变量和效果的差异支持对异质性的关注。研究结果支持CBPR和自闭症研究的交叉性方法。