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探索美国有和没有自闭症的自我认同为黑人的新兴成年人中的种族歧视、残疾歧视以及对未来的认知:一项混合方法描述性研究。

Exploring Racial Discrimination, Disability Discrimination, and Perception of the Future Among Black-Identifying Emerging Adults with and without Autism in the United States: A Mixed-Methods Descriptive Study.

作者信息

Davis Amber M, Smith Emma, Yang Xuhao, Wright Rebecca

机构信息

School of Nursing, Johns Hopkins University, 524 N. Wolfe St, Baltimore, MD 21205 USA.

Johns Hopkins Disability Health Research Center, Baltimore, MD USA.

出版信息

J Child Adolesc Trauma. 2024 Mar 20;17(4):1019-1034. doi: 10.1007/s40653-024-00624-7. eCollection 2024 Dec.

Abstract

Discrimination experienced by Black emerging adults with autism is rarely studied nor have their experiences been juxtaposed to Black emerging adults without autism. A mixed methods descriptive approach was used to describe responses to open-ended questions collected as part of a larger study of discrimination experienced by Black emerging adults with autism (n = 14) and Black emerging adults without autism (n = 20). Questions focused around racial discrimination, disability discrimination, and perception of the future. Qualitative and quantitative content analysis were applied. Qualitatively- a manifest approach was used, and quantitatively- frequency counts and ratios were identified within themes and subthemes. Four main themes and twelve subthemes were identified. Racial discrimination had two themes: 1) and 2) S, with five subthemes, each reported at higher rates by people without autism (Theme 1 = 5:7, Theme 2 = 3:11). Disability discrimination was only reported on by those with autism, and had one main theme of neurodiverse/autism bias, and three subthemes. Perception of the future contained the theme of , with four subthemes. Subthemes relating to work/career/family and future unknown were reported more highly by those without autism than with autism (1:8 and 4:7 respectively), while subthemes describing diverse or unique priorities for fulfillment and mental wellness were reported only by those with autism (6:0 and 4:0 respectively). Study findings suggest unique experiences and needs among Black emerging adults with autism, as well as the consequences of anti-blackness and anti-ableism/neurobigotry which can have double impact in their lives, spanning different ages and stages. Results have implications for building resiliency among Black persons with autism and without autism as they transition to adulthood.

摘要

患有自闭症的黑人青年所经历的歧视很少被研究,他们的经历也从未与没有自闭症的黑人青年的经历相比较。本研究采用混合方法描述性方法,以描述对开放式问题的回答,这些问题是作为对患有自闭症的黑人青年(n = 14)和没有自闭症的黑人青年(n = 20)所经历的歧视的一项更大规模研究的一部分而收集的。问题围绕种族歧视、残疾歧视和对未来的看法展开。应用了定性和定量内容分析。定性方面——采用了显性方法,定量方面——在主题和子主题中确定了频率计数和比率。确定了四个主要主题和十二个子主题。种族歧视有两个主题:1) 和2)S,有五个子主题,每个子主题在没有自闭症的人中报告率更高(主题1 = 5:7,主题2 = 3:11)。残疾歧视仅由患有自闭症的人报告,有一个主要主题是神经多样性/自闭症偏见,以及三个子主题。对未来的看法包含 主题,有四个子主题。与工作/职业/家庭和未来未知相关的子主题在没有自闭症的人中报告率高于患有自闭症的人(分别为1:8和4:7),而描述实现和心理健康的不同或独特优先事项的子主题仅由患有自闭症的人报告(分别为6:0和4:0)。研究结果表明,患有自闭症的黑人青年有独特的经历和需求,以及反黑人主义和反能力主义/神经偏见的后果,这些在他们不同年龄和阶段的生活中可能产生双重影响。研究结果对于在患有自闭症和没有自闭症的黑人向成年过渡过程中建立复原力具有启示意义。

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