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巴西间质性肺疾病患者在线正念干预(eMBI)期间的感恩感知:一项探索性定性研究

Perception of Gratitude During an Online Mindfulness-Based Intervention (eMBI) in Patients with Interstitial Lung Disease in Brazil: An Exploratory Qualitative Study.

作者信息

Miranda Siliana Maria Duarte, de Assis Pires Gabriela Patrus Ananias, Mancuzo Eliane Viana, Leal Andrew Nogueira Albuquerque, de Pinho Cunha Paiva Sara

机构信息

Graduate Program in Applied Adult Health Sciences, Federal University of Minas Gerais, Belo Horizonte, Brazil.

Hospital das Clínicas of the Federal University of Minas Gerais, Belo Horizonte, Brazil.

出版信息

J Relig Health. 2024 Nov 18. doi: 10.1007/s10943-024-02177-3.

Abstract

Interstitial lung diseases (ILDs) have an impact on patient quality of life at some point. Alternatives such as pulmonary rehabilitation, oxygen supplementation, yoga, and mindfulness practices can help in the care of patients with ILD. The current study was designed to explore the perceptions of gratitude by patients with various ILDs during an MBI. This was a qualitative study involving 50 patients with ILDs. Data were collected through transcription of expressions of gratitude during weekly sessions. A six-phase thematic analysis was used to evaluate the data qualitatively. The results obtained allowed the construction of five thematic categories of gratitude: Religious belief: recognition of the existence of a God being evident in the statements of several patients, who relied on it as a strategy for coping with the disease; the possibility of autonomy: perceived in the importance placed upon being able to perform simple, routine tasks; the presence of family and friends, the assurance of treatment by the health care team and the treatment itself; and the changes achieved through the mindfulness training. Despite the severity and limitations imposed by the disease, the participants were able to perceive the importance and meaning of the presence of family and friends, spirituality, the medical team, and mindfulness in their lives.

摘要

间质性肺疾病(ILDs)在某些时候会对患者的生活质量产生影响。诸如肺康复、吸氧、瑜伽和正念练习等替代方法有助于ILD患者的护理。本研究旨在探讨不同类型ILD患者在进行正念减压疗法(MBI)期间对感恩的认知。这是一项涉及50名ILD患者的定性研究。通过转录每周疗程中感恩的表达来收集数据。采用六阶段主题分析法对数据进行定性评估。所得结果构建了感恩的五个主题类别:宗教信仰:在几位患者的陈述中明显体现出对上帝存在的认可,他们将其作为应对疾病的一种策略;自主可能性:体现在能够执行简单日常任务的重要性上;家人和朋友的陪伴、医疗团队对治疗的保障以及治疗本身;以及通过正念训练所取得的改变。尽管疾病带来了严重程度和限制,但参与者能够察觉到家人和朋友的陪伴、灵性、医疗团队以及正念在他们生活中的重要性和意义。

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