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哮喘和慢性阻塞性肺疾病治疗决策、偏好、依从性及长期管理的观点:对患者、护理人员及医疗服务提供者见解的定性分析

Perspectives on Treatment Decisions, Preferences, and Adherence and Long-Term Management in Asthma and COPD: A Qualitative Analysis of Patient, Caregiver, and Healthcare Provider Insights.

作者信息

Román-Rodríguez Miguel, McMullan Ilona, Warner Michelle, Compton Christopher H, Tal-Singer Ruth, Orlow Jean M, Han MeiLan K

机构信息

Centro de Salud Dra. Teresa Pique, Mallorca, Spain.

Instituto de Investigación Sanitaria de las Islas Baleares (IdISBa), Mallorca, Spain.

出版信息

Patient Prefer Adherence. 2024 Nov 14;18:2295-2306. doi: 10.2147/PPA.S467870. eCollection 2024.

DOI:10.2147/PPA.S467870
PMID:39559482
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11571923/
Abstract

PURPOSE

Asthma and chronic obstructive pulmonary disease (COPD) are associated with substantial morbidity and mortality. This analysis assessed patient, caregiver, and healthcare provider (HCP) opinions regarding asthma and COPD diagnosis and treatment, including inhaler device preferences.

PATIENTS AND METHODS

Insights were from: (1) face-to-face/telephone patient/HCP communications with GSK Global Medical Teams; (2) social media listening; (3) a self-completed online patient/caregiver survey. Data were anonymized and informed consent was provided. Qualitative outputs were extracted, analyzed inductively, and coded per key themes, such as treatment preferences (including perceptions of single inhaler triple therapy [SITT] versus multiple inhaler triple therapy [MITT]) and long-term treatment goals. Data could be assigned to ≥1 theme.

RESULTS

Overall, 2966 patient and HCP insights (patients, 1150; HCPs, 1816), 988 social media posts, and 44 survey responses (patients, 33; caregivers, 11) were included. Within this analysis, some patients delayed seeking medical advice due to lack of disease understanding and used alternative information sources to better understand treatment options (eg, social media). Patients preferred SITT over MITT in terms of convenience, ease of use, and perceived efficacy; some believed that MITT provided greater coverage due to frequent dosing. HCPs recognized the tendency of patient preferences to drive treatment decisions, and highlighted a reluctance to change therapy among some patients, particularly those well controlled in current therapy. Patients preferred therapies with a shorter onset of action. Patients tended to measure treatment success by symptom improvement and quality of life, whereas HCPs measured treatment success through clinical tests. HCPs reported a lack of patient awareness of the mortality risk associated with COPD.

CONCLUSION

There is discordance between patient and HCP perceptions of treatment success and goals in asthma and COPD. Improved patient education and HCP-patient communication are needed to facilitate meaningful shared decision-making, optimize care plans, and provide early treatment options.

摘要

目的

哮喘和慢性阻塞性肺疾病(COPD)与较高的发病率和死亡率相关。本分析评估了患者、护理人员和医疗保健提供者(HCP)对哮喘和COPD诊断与治疗的看法,包括吸入装置偏好。

患者与方法

见解来源于:(1)患者/HCP与葛兰素史克全球医疗团队的面对面/电话沟通;(2)社交媒体监测;(3)患者/护理人员自行完成的在线调查。数据进行了匿名处理,并获得了知情同意。提取定性结果,进行归纳分析,并按关键主题编码,如治疗偏好(包括对单吸入器三联疗法[SITT]与多吸入器三联疗法[MITT]的看法)和长期治疗目标。数据可归入≥1个主题。

结果

总体而言,纳入了2966条患者和HCP的见解(患者1150条;HCP 1816条)、988条社交媒体帖子以及44份调查回复(患者33份;护理人员11份)。在该分析中,一些患者因对疾病缺乏了解而延迟寻求医疗建议,并使用其他信息来源以更好地了解治疗选择(如社交媒体)。在便利性、易用性和感知疗效方面,患者更喜欢SITT而非MITT;一些人认为MITT由于给药频繁而提供了更大的覆盖范围。HCP认识到患者偏好驱动治疗决策的趋势,并强调一些患者不愿改变治疗方案,特别是那些当前治疗控制良好的患者。患者更喜欢起效较快的治疗方法。患者倾向于通过症状改善和生活质量来衡量治疗成功与否,而HCP则通过临床检查来衡量治疗成功与否。HCP报告称患者对与COPD相关的死亡风险缺乏认识。

结论

患者和HCP对哮喘和COPD治疗成功与目标的认知存在不一致。需要加强患者教育以及HCP与患者之间的沟通,以促进有意义的共同决策、优化护理计划并提供早期治疗选择。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cb0d/11571923/4ec7ef9e9d9c/PPA-18-2295-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cb0d/11571923/c52ac43f525d/PPA-18-2295-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cb0d/11571923/4ec7ef9e9d9c/PPA-18-2295-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cb0d/11571923/c52ac43f525d/PPA-18-2295-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cb0d/11571923/4ec7ef9e9d9c/PPA-18-2295-g0002.jpg

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