Phillips Gemma, McCullough Fiona, Hemingway Pippa
School of Health Sciences, University of Nottingham, Nottingham, UK.
Nutrition and Dietetics, Leicestershire Partnership NHS Trust, Leicester, UK.
J Child Health Care. 2024 Nov 19:13674935241299277. doi: 10.1177/13674935241299277.
Using a blended diet as an alternative to commercial formula is becoming more popular amongst parents and carers of children and young people (CYP) requiring long-term enteral tube feeding (ETF). Emerging evidence has demonstrated physiological and social benefits; however, families report feeling unsupported to use a blended diet in settings outside the home. This study aimed to explore the attitudes of health and social care staff towards the use of blended diets for CYP. Health and social care professionals with experience of blended diets were invited to partake in an online semi-structured qualitative interview. Thematic analysis was used to identify themes. Five participants from health, education and social care settings were interviewed. Online interviews worked effectively for data collection to allow flexibility to accommodate participants' care roles and avoid face-to-face contact necessary with Coronavirus disease 2019 restrictions. Three themes were identified in the data:• Change from medicalised enteral tube feeding practice.• Individual, person-centred approach.• Open support networks and responsibility.Findings showed that blended diets can be accommodated; however, barriers to implementation remain. Medicalisation of ETF continues to impair acceptance of blended diets whilst effective multi-disciplinary team communication and support facilitates its use in settings outside the home.
对于需要长期肠内管饲(ETF)的儿童和青少年(CYP)的家长及照料者而言,使用混合饮食替代商业配方奶粉正变得越来越流行。新出现的证据表明其具有生理和社会效益;然而,家庭报告称,在家庭以外的环境中使用混合饮食时,感觉缺乏支持。本研究旨在探讨卫生和社会护理人员对CYP使用混合饮食的态度。邀请了有混合饮食经验的卫生和社会护理专业人员参加在线半结构化定性访谈。采用主题分析法来确定主题。对来自卫生、教育和社会护理领域的五名参与者进行了访谈。在线访谈有效地收集了数据,使参与者能够灵活地兼顾护理工作,同时避免了因2019年冠状病毒病限制措施而产生的面对面接触。数据中确定了三个主题:
• 从医疗化肠内管饲实践转变。
• 个性化、以人为本的方法。
• 开放的支持网络和责任。
研究结果表明,可以采用混合饮食;然而,实施过程中仍存在障碍。ETF的医疗化继续影响对混合饮食的接受度,而有效的多学科团队沟通和支持则有助于其在家庭以外的环境中使用。