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1
Patients with rare diseases are responsible for the majority of hospitalizations in a Brazilian tertiary pediatric hospital: Preliminary data.巴西一家三级儿科医院中,罕见病患者占住院患者的大多数:初步数据。
Clinics (Sao Paulo). 2024 Nov 22;79:100535. doi: 10.1016/j.clinsp.2024.100535. eCollection 2024.
2
The COVID-19 Pandemic and Canadian Pediatric Tertiary Care Hospitalizations for Anorexia Nervosa.COVID-19 大流行与加拿大儿科三级护理机构的神经性厌食症住院治疗。
J Adolesc Health. 2023 Mar;72(3):344-351. doi: 10.1016/j.jadohealth.2022.07.003. Epub 2022 Oct 4.
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Rotavirus-related hospitalizations are responsible for high seasonal peaks in all-cause pediatric hospitalizations.轮状病毒相关住院是导致所有病因儿科住院季节性高峰的主要原因。
Pediatr Infect Dis J. 2012 Dec;31(12):e244-9. doi: 10.1097/INF.0b013e31826a5ba1.
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Pediatric acquired demyelinating syndrome (ADS) in inpatient hospital settings: The hospitalization rate, costs, and outcomes in the US.美国住院环境中儿童获得性脱髓鞘综合征(ADS):住院率、费用和结局。
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Patterns of hospital utilization in the Unified Health System in six Brazilian capitals: comparison between the year before and the first six first months of the COVID-19 pandemic.巴西六个首府的统一卫生系统中的医院利用模式:与 COVID-19 大流行前一年和前六个月的比较。
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Unveiling patterns in pediatric appendectomy: A comparative study on healthcare resource capacity and surgical decisions in Brazil.揭示小儿阑尾切除术的模式:巴西医疗资源能力和手术决策的比较研究。
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Hospitalizations of children and adolescents with complex chronic conditions in Brazil: a temporal analysis from 2009 to 2020.巴西患有复杂慢性病的儿童和青少年的住院情况:2009年至2020年的时间分析。
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Impact of children with complex chronic conditions on costs in a tertiary referral hospital.复杂慢性病儿童对三级转诊医院费用的影响。
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Trends in SARS-CoV-2-related pediatric hospitalizations reported to the Canadian Nosocomial Infection Surveillance Program, March 2020 to December 2022.2020年3月至2022年12月向加拿大医院感染监测项目报告的与严重急性呼吸综合征冠状病毒2(SARS-CoV-2)相关的儿科住院情况趋势。
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本文引用的文献

1
Epidemiology of rare diseases in Brazil: protocol of the Brazilian Rare Diseases Network (RARAS-BRDN).巴西罕见病流行病学研究:巴西罕见病网络(RARAS-BRDN)研究方案。
Orphanet J Rare Dis. 2022 Feb 24;17(1):84. doi: 10.1186/s13023-022-02254-4.
2
Difficulties in the diagnosis and treatment of rare diseases according to the perceptions of patients, relatives and health care professionals.根据患者、家属和医护人员的认知看罕见病的诊断与治疗困难
Clinics (Sao Paulo). 2018;73:e68. doi: 10.6061/clinics/2018/e68. Epub 2018 Apr 5.
3
Emergence of pediatric rare diseases: Review of present policies and opportunities for improvement.儿科罕见病的出现:现行政策回顾与改进机遇
Rare Dis. 2013 Jan 28;1:e23579. doi: 10.4161/rdis.23579. eCollection 2013.

Patients with rare diseases are responsible for the majority of hospitalizations in a Brazilian tertiary pediatric hospital: Preliminary data.

作者信息

Grassiotto Cristina, Pavani Simone, Cavalcanti Nara Vasconcelos, Gonçalves Angelina, Watanabe Andreia, Odone-Filho Vicente, Tannuri Ana Cristina Aoun, Silva Clovis Artur A, Carneiro-Sampaio Magda

机构信息

Instituto da Criança, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, Brazil.

Instituto da Criança, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, Brazil.

出版信息

Clinics (Sao Paulo). 2024 Nov 22;79:100535. doi: 10.1016/j.clinsp.2024.100535. eCollection 2024.

DOI:10.1016/j.clinsp.2024.100535
PMID:39579463
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11625286/
Abstract
摘要