Patients with rare diseases are responsible for the majority of hospitalizations in a Brazilian tertiary pediatric hospital: Preliminary data.
作者信息
Grassiotto Cristina, Pavani Simone, Cavalcanti Nara Vasconcelos, Gonçalves Angelina, Watanabe Andreia, Odone-Filho Vicente, Tannuri Ana Cristina Aoun, Silva Clovis Artur A, Carneiro-Sampaio Magda
机构信息
Instituto da Criança, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, Brazil.
Instituto da Criança, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, Brazil.
出版信息
Clinics (Sao Paulo). 2024 Nov 22;79:100535. doi: 10.1016/j.clinsp.2024.100535. eCollection 2024.
Abstract
摘要
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本文引用的文献
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Epidemiology of rare diseases in Brazil: protocol of the Brazilian Rare Diseases Network (RARAS-BRDN).巴西罕见病流行病学研究：巴西罕见病网络（RARAS-BRDN）研究方案。
Orphanet J Rare Dis. 2022 Feb 24;17(1):84. doi: 10.1186/s13023-022-02254-4.
2
Difficulties in the diagnosis and treatment of rare diseases according to the perceptions of patients, relatives and health care professionals.根据患者、家属和医护人员的认知看罕见病的诊断与治疗困难
Clinics (Sao Paulo). 2018;73:e68. doi: 10.6061/clinics/2018/e68. Epub 2018 Apr 5.
3
Emergence of pediatric rare diseases: Review of present policies and opportunities for improvement.儿科罕见病的出现：现行政策回顾与改进机遇
Rare Dis. 2013 Jan 28;1:e23579. doi: 10.4161/rdis.23579. eCollection 2013.
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