Department of Basic Nursing, School of Nursing, Hengyang Medical School, University of South China, Hengyang, Hunan, 421000, People's Republic of China.
Int J Chron Obstruct Pulmon Dis. 2024 Nov 18;19:2467-2479. doi: 10.2147/COPD.S473790. eCollection 2024.
Understanding patients' perceptions of their illness may be more beneficial for healthcare providers in maintaining vigilance than merely focusing on the clinical status of patients. As patients' perceptions can significantly influence their behavior, it is possible that health care providers who are aware of patients' thoughts in advance may help improve their intervention programs, such as increased treatment adherence. However, current research offers limited insight into the subjective perceptions of disease among patients with Chronic Obstructive Pulmonary Disease (COPD). This study aims to deeply explore COPD patients' illness perception and coping behaviors.
A descriptive qualitative approach was used, conducting semi-structured in-depth interviews with 32 COPD patients, and verbatim data recording. Data analysis was based on thematic analysis methods proposed by Braun and Clarke.
Through data analysis, we identified three themes to describe participants' perceptions and coping behaviors related to COPD: inadequate knowledge regarding the disease, improper self-management of the disease, and diverse impacts resulting from the disease.
Illness perception is crucial for COPD patients. Participants' descriptions underscored their perceptions of the disease as well as the various challenges and consequences they face when dealing with it. To enhance care for individuals with COPD, researchers and healthcare professionals should increase awareness about the disease among patients, understanding their coping strategies, beliefs, and recognizing its significant impacts.
了解患者对自身疾病的看法,可能比对患者的临床状况保持警惕更有助于医疗保健提供者。因为患者的看法会极大地影响他们的行为,所以提前了解患者想法的医疗保健提供者可能会帮助改善他们的干预计划,例如提高治疗依从性。然而,目前的研究对于慢性阻塞性肺疾病(COPD)患者的主观疾病感知提供的见解有限。本研究旨在深入探讨 COPD 患者的疾病感知和应对行为。
采用描述性定性方法,对 32 名 COPD 患者进行半结构化深入访谈,并进行逐字记录。数据分析基于 Braun 和 Clarke 提出的主题分析方法。
通过数据分析,我们确定了三个主题来描述参与者对 COPD 的感知和应对行为:对疾病的了解不足、对疾病的自我管理不当以及疾病带来的多样化影响。
疾病感知对 COPD 患者至关重要。参与者的描述强调了他们对疾病的看法,以及在应对疾病时面临的各种挑战和后果。为了加强对 COPD 患者的护理,研究人员和医疗保健专业人员应该提高患者对疾病的认识,了解他们的应对策略、信念,并认识到其重大影响。