Music, Creativity and Wellness Lab, College of Nursing and Health Professions, Drexel University, Philadelphia, PA, United States.
The City University of New York School of Medicine, New York, NY, United States.
JMIR Cancer. 2024 Nov 22;10:e53440. doi: 10.2196/53440.
Music-based interventions (MBIs) are evidence-based, nonpharmacological treatments that include music therapy (MT) delivered by board-certified music therapists, as well as music services (MS) delivered by other health professionals and volunteers. Despite MBI's growing evidence base in cancer symptom management, it remains unclear how MBI-related information is presented to the public. Over 80% of people with cancer use the internet to find health-related information. In the United States, the National Cancer Institute (NCI) identifies certain Cancer Centers (CCs) as NCI-designated CCs or Comprehensive Cancer Centers (CCCs) based on their excellence in research. As NCI-designated CCs and CCCs are considered the gold standard in cancer care, their websites are viewed by the public as important sources of information.
We aimed to determine scope, findability, and quality of MBI-related information on public-facing websites of NCI-designated CCs/CCCs.
We reviewed 64 NCI-designated CC/CCC websites (excluding basic laboratories) between November 2022 and January 2023. We extracted data on the scope of information: (1) type of MBI offered (MT or MS), (2) format (individual, group), (3) method of delivery (in person or remotely delivered), (4) setting (inpatient or outpatient), (5) target population (pediatric or adult), (6) MBI practitioner qualifications, (7) clinical indications or benefits, (8) presence of testimonials, (9) cost, and (10) scheduling or referral information. We also extracted data on findability (ie, presence of direct link or drop-down menu and the number of clicks to locate MBI-related information). Based on the scope and findability data, we rated the information quality as high, moderate, or low using an adapted scale informed by prior research.
Thirty-one (48%) of the 64 CC/CCCs described MBIs on their websites. Of these, 6 (19%) mentioned both MT and MS, 16 (52%) mentioned MT only, and 9 (29%) mentioned MS only. The most common format was hybrid, involving individuals and groups (n=20, 65%). The most common delivery method was in person (n=16, 52%). The most common target population was adults (n=12, 39%). The most common MBI practitioners were board-certified music therapists (n=21, 68%). The most described indications or benefits were psychological. Twenty-eight (90%) websites lacked testimonials, and 26 (84%) lacked cost information. Twenty-six (84%) websites provided scheduling or referral information. MBI-related information was found with an average of 4 (SD 1) clicks. Nine (29%) websites were of high quality, 18 (58%) were moderate, and 4 (13%) were low.
Based on public websites, MBIs were most commonly delivered in person by board-certified music therapists to outpatient and inpatient adults, using individual and group formats to provide psychological benefits. The findability and quality of this information should be improved to promote the dissemination of MBIs for cancer symptom management.
音乐干预(MBI)是一种基于证据的非药物治疗方法,包括由 board-certified 音乐治疗师提供的音乐治疗(MT),以及由其他健康专业人员和志愿者提供的音乐服务(MS)。尽管 MBI 在癌症症状管理方面的证据基础不断增加,但仍不清楚如何向公众介绍与 MBI 相关的信息。超过 80%的癌症患者使用互联网来寻找与健康相关的信息。在美国,国家癌症研究所(NCI)根据其在研究方面的卓越表现,将某些癌症中心(CC)确定为 NCI 指定的 CC 或综合癌症中心(CCC)。由于 NCI 指定的 CC 和 CCC 被认为是癌症护理的黄金标准,因此公众认为它们的网站是重要的信息来源。
我们旨在确定 NCI 指定的 CC/CCC 面向公众的网站上与 MBI 相关的信息的范围、可发现性和质量。
我们在 2022 年 11 月至 2023 年 1 月期间审查了 64 个 NCI 指定的 CC/CCC 网站(不包括基础实验室)。我们提取了有关信息范围的数据:(1)提供的 MBI 类型(MT 或 MS),(2)格式(个体、团体),(3)交付方式(亲自或远程交付),(4)设置(住院或门诊),(5)目标人群(儿科或成人),(6)MBI 从业者的资格,(7)临床适应症或益处,(8)存在证明,(9)成本,以及(10)预约或转介信息。我们还提取了有关可发现性的数据(即直接链接或下拉菜单的存在以及找到与 MBI 相关信息所需的点击次数)。根据范围和可发现性数据,我们使用先前研究提供的改编量表将信息质量评为高、中或低。
在 64 个 CC/CCC 中,有 31 个(48%)在其网站上描述了 MBIs。其中,有 6 个(19%)提到了 MT 和 MS,16 个(52%)仅提到了 MT,9 个(29%)仅提到了 MS。最常见的格式是涉及个人和团体的混合形式(n=20,65%)。最常见的交付方法是亲自(n=16,52%)。最常见的目标人群是成年人(n=12,39%)。最常见的 MBI 从业者是 board-certified 音乐治疗师(n=21,68%)。最描述的适应症或益处是心理方面的。有 28 个(90%)网站缺乏证明,有 26 个(84%)网站缺乏成本信息。有 26 个(84%)网站提供预约或转介信息。找到与 MBI 相关的信息平均需要 4(SD 1)次点击。有 9 个(29%)网站的质量较高,18 个(58%)网站的质量中等,4 个(13%)网站的质量较低。
根据公共网站,MBI 最常见的是由 board-certified 音乐治疗师亲自提供,对象是门诊和住院的成年患者,采用个体和团体形式提供心理益处。应提高这些信息的可发现性和质量,以促进 MBI 在癌症症状管理中的传播。