Nuño Tomas, Ellingson Katherine D, Chen Zhao, Both Matt De, Johnson Megan, Venkatachalam Harshini, Carrasco Carolina, Horton Ashleigh, Rubio Melanie, Yang Yunjia, Leito Grace, Nuqui Sean, Ryan Lee, Coon David W, Huentelman Matt
Department of Epidemiology & Biostatistics, University of Arizona, Tucson, AZ, USA.
Neurogenomics Division, Translational Genomics Research Institute (TGen), Phoenix, AZ, USA.
Hisp Health Care Int. 2024 Nov 25:15404153241292257. doi: 10.1177/15404153241292257.
The research community has struggled to successfully recruit and retain Hispanic participants into research studies. The purpose of our study is to describe Hispanic enrollment into our study across the past decade. We sought to identify trends in Hispanic engagement in internet-based recruitment over three distinct time periods including the COVID-19 pandemic. MindCrowd (MC) is a web-based research study that aims to identify potential factors influencing age-related cognitive decline and disease. The MC platform was launched on 01/2013 and as of 7/2023 has 403,633 participants. To explore Hispanic recruitment, we considered three different cohorts: 01/2013 through 03/2020 labeled as "MC1", 04/2020 through 05/2022 labeled "MC-C19", and 07/2022 to 07/2023 labeled "MC2". We compared these three cohorts and examined the individual cohort demographics. For the entire study, 22,067 (6%) identified as Hispanic. MC2 has demonstrated an increase in percent Hispanic recruitment compared to MC1 (8.0% vs 4.4%, respectively). Hispanic participation by U.S. State has a strong correlation with Hispanic population size in respective U.S. States (R = 0.9). Additionally, Hispanic recruitment during the COVID-19 pandemic increased. Improvement in internet-based Hispanic recruitment over time suggests the potential of innovative strategies to enhance their representation in health research.
研究界一直在努力成功招募和留住西班牙裔参与者参与研究。我们研究的目的是描述过去十年中西班牙裔参与我们研究的情况。我们试图确定西班牙裔在包括新冠疫情在内的三个不同时间段参与基于互联网招募的趋势。MindCrowd（MC）是一项基于网络的研究，旨在确定影响与年龄相关的认知衰退和疾病的潜在因素。MC平台于2013年1月推出，截至2023年7月有403,633名参与者。为了探索西班牙裔的招募情况，我们考虑了三个不同的队列：2013年1月至2020年3月标记为“MC1”，2020年4月至2022年5月标记为“MC-C19”，以及2022年7月至2023年7月标记为“MC2”。我们比较了这三个队列并检查了各个队列的人口统计学特征。在整个研究中，有22,067人（6%）自认为是西班牙裔。与MC1相比，MC2的西班牙裔招募百分比有所增加（分别为8.0%和4.4%）。美国各州的西班牙裔参与情况与相应州的西班牙裔人口规模有很强的相关性（R = 0.9）。此外，新冠疫情期间西班牙裔的招募有所增加。随着时间推移，基于互联网的西班牙裔招募情况有所改善，这表明创新策略有可能提高他们在健康研究中的代表性。
