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新冠疫情后南非脑瘫患儿照料者经历的社会生态框架

A Socioecological Framing of the Experiences of Caregivers of Children With Cerebral Palsy in South Africa Post COVID-19.

作者信息

Adams Skye, Moosa Aneesah, Bhorat Razina

机构信息

Department of Speech Pathology and Audiology, School of Human and Community Development, University of the Witwatersrand, Johannesburg, South Africa.

出版信息

J Child Neurol. 2025 Mar;40(3):191-199. doi: 10.1177/08830738241292844. Epub 2024 Nov 26.

Abstract

BackgroundPost COVID-19, caregivers of children with cerebral palsy in South Africa face unique challenges.MethodsA qualitative exploratory approach was used. Semistructured interviews were conducted with 14 caregivers of children with cerebral palsy in Gauteng, South Africa. Interviews were audio-recorded, transcribed verbatim, and analysed using thematic analysis.ResultsLockdown restrictions have had lasting effects on families' routines and events, reshaping their internal and external functioning. The pandemic introduced new challenges, such as increased physical pain due to the child's weight gain, persistent emotional distress, and a lack of social and governmental support.ConclusionPost COVID-19, it is crucial to develop innovative support mechanisms for children with cerebral palsy and their caregivers, focusing on comprehensive health services, robust social support, and targeted interventions to address the ongoing and new challenges faced by these families.

摘要

背景

在南非,新冠疫情之后,脑瘫患儿的照料者面临着独特的挑战。

方法

采用定性探索性方法。对南非豪登省14名脑瘫患儿的照料者进行了半结构化访谈。访谈进行了录音,逐字转录,并采用主题分析法进行分析。

结果

封锁限制对家庭的日常事务和活动产生了持久影响,重塑了他们的内部和外部功能。疫情带来了新的挑战,比如因孩子体重增加导致身体疼痛加剧、持续的情绪困扰以及缺乏社会和政府支持。

结论

新冠疫情之后,为脑瘫患儿及其照料者建立创新的支持机制至关重要,重点是提供全面的健康服务、强大的社会支持以及针对性干预措施,以应对这些家庭面临的持续和新出现的挑战。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bb5d/11909768/30eb59649a8e/10.1177_08830738241292844-fig1.jpg

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